New network member - FH Australia

The FH Europe Foundation is delighted to welcome FH Australia as the newest member of our international network of patient organisations dedicated to improving the lives of individuals and families affected by inherited lipid conditions HeFH, HoFH, elevated lipoprotein(a) and FCS. 

FH Australia brings extraordinary strength to the global movement: a lived experience–led, patient-centred organisation deeply embedded within Australia’s national research, clinical leadership, and advocacy landscape. Their commitment to shifting the dial on familial hypercholesterolaemia (FH) and elevated Lp(a) awareness, diagnosis, and access to care strongly aligns with the values and mission of FH Europe Foundation.experience–ledcentred organisation deeply embedded within Australia’s national research, clinical leadership, and advocacy landscape. Their commitment to shifting the dial on FH and Lp(a) awareness, diagnosis, and access to care strongly aligns with the values and mission of FH Europe Foundation. 

FH Australia expressed a clear and compelling motivation for joining the FH Europe Foundation network:

• to become part of the global FH and elevated Lp(a) advocacy movement,
• to strengthen their national efforts with global perspectives and collaborative leverage, and
• to further grow their organisational capability as they expand reach across Australia. 

As a relatively young organisation, they note that they are now “sufficiently mature to enter into this relationship equitably,” reflecting their readiness to engage, contribute, and benefit from the shared expertise within our network. 

Although FH Australia operates outside the geographical scope of Europe, their ethos mirrors our own. They resonate with the spirit of our message “one voice” — not in a geographical sense but in the strength of unified, evidence-based patient advocacy.based patient advocacy 

Their mission to elevate awareness, support, education, and early detection perfectly aligns with FHEF’s overarching goals. Together, we recognise that collaboration across borders accelerates progress for all. 

FH Australia will contribute to the shared international mission by:

• participating in FHEF advocacy and policy initiatives where aligned with their national objectives;
• championing improved testing, diagnosis, and treatment access in Australia;
• aligning with FHEF positions and amplifying them within their sphere of influence; and
• sharing insights grounded in lived experience and embedded clinical partnerships.

They also look forward to having their Ambassadors take part in the Patient Ambassador Education Programme, enriching both the programme and their local community. 

By joining the FHEF Network, FH Australia seeks:

• a deeper connection to global patient advocates;
• enhanced skills in organisational, patient, and government advocacy;
• increased visibility and recognition as Australia’s lived experience peak body; and
• a strong, pan-national relationship with FHEF leadership and fellow member groups national relationship with FHEF leadership and fellow member groups. 

These opportunities will help them amplify their efforts across Australia—a unique environment where vast geography, resource limitations, and uneven awareness pose challenges to reaching undiagnosed families. 

Seeing this as a meaningful, global impact and we are honoured to welcome FH Australia into the FH Europe Foundation Network. Their passion, expertise, and lived experience enrich our collective mission and expand our global reach. Together, we stand stronger in advocating for early detection, equitable diagnosis, and improved treatment access for people living with FH and elevated Lp(a), no matter where they live. 

Welcome, FH Australia—we look forward to shaping the future of patient support and FH advocacy, together.