Explore the highlights from FH Europe's January 2024 Heart Beat newsletter to catch up on the latest news and events in the world of cardiovascular health:
FH Europe Foundation's organization of the PERFECTO kick-off meeting.
FH Europe Foundation's participation in the PerMed FH kick-off meeting in Lisbon.
Rare Disease Day – learn how to get involved.
Driving Newborn Screening Innovations: Collaborative Efforts for Early Rare Diseases Detection.
Europe Rare Disease Summit 2024 and how to get your free ticket.
Information on Lp(a) Awareness Day happening in March.
Patient advocates' voice represented in the Scientific Program Committee for the 20th International Symposium on Atherosclerosis 2024.
Download your Awareness Day and Events Calendar 2024.
OECD's PaRIS Initiative: Revolutionizing Patient-Centric Healthcare Globally.
Bulgaria’s high-level policy round table to address FH pediatric screening in the country.
Ireland’s first health checks of the year and engaging Policy-Makers at Home and Abroad.
Italy’s 2024 initiatives for Elevating Cardiovascular Health Awareness.
Heart UK’s HoFH Networking Day happening at the end of February.
Global Heart Hub's Milestone: 100+ Supporters for the Global Cholesterol Action Plan in 2023.
EURORDIS’ European Conference on Rare Diseases and Orphan Products 2024 and launching of the Social Policy Action Group (SPAG).
European Patients Forum’s call to join the HEU-EFS patient advisory group.
World Heart Federation’s representation of the global cardiovascular community at the 154th Executive Board of the World Health Organization, implementing the WHF Roadmap for Cardiovascular Disease Prevention and their new strategy for the next two years.
EFPIA’s virtual event: Getting to the heart of the matter: improving cardiovascular health in Europe.
New publications on International Atherosclerosis Society Roadmap for Familial Hypercholesterolemia, Recommendations of the Experts of the Polish Cardiac Society (PCS), and the Polish Lipid Association (PoLA) on the diagnosis and management of elevated lipoprotein(a) levels, LDL-C–Lowering Therapies for Adults and Children with Homozygous Familial Hypercholesterolemia: Challenges and Successes, Rare Disease Moonshot: Europe’s Public-Private Coalition to Erase the Rare Disease “White Spots”.
Novel treatment for HoFH available now for children in the UK.
