We are pleased to announce that the 1st FH Europe Foundation Annual Network Meeting is set to take place in Amsterdam, The Netherlands, from the 10th to the 12th of November 2023 (2nd weekend of November). 

The Annual Network meeting will focus on two key segments:

1. Pre-meeting online webinars

With a dedication to boosting health literacy about inherited lipid conditions and extending our reach to as many individuals as possible, we are excited to host 4 disease-specific webinars before the main event. These webinars will be specially curated to delve into the science and pertinent advancements concerning FH, HoFH, LP(a), and FCS.

The webinars will take place online via Zoom and are open to the public, so everyone is welcome to join, learn, and contribute.

2. Hybrid meeting in Amsterdam

The heart of the event will take place in person in Amsterdam, with the main sessions and workshops on Saturday and Sunday thoughtfully designed in a hybrid format, allowing participation both in-person and online.

Please note that the Hybrid Meeting in Amsterdam is exclusive to FH Europe Foundation Network leaders/members, Patient Ambassadors and other invited Participants; it is not open to the general public.
10 – 12 November 2023 (Friday-Sunday)
We are looking forward to seeing you in Amsterdam and online!


Together, engaged for change!
With this event slogan, we will be celebrating the achievements of FH Europe Network and our community. We are emphasising the importance of our collaboration, through the transition from FH Europe to FH Europe Foundation. Simultaneously, it is a call to action to build and drive engagement. Our aim is to engage others and increase their involvement – as an individual, as a family group and as a community. In this way we will create the positive change we strive for on behalf of the patients and citizens we represent.
The visual theme is the Tree of Hearts by Sara Otter, our Artistic Ambassador. It depicts beautifully what FH Europe Foundation stands for. The diversity and the sheer number of people affected by familial lipid conditions, like FH, HoFH, elevated Lp(a) and FCS.

The tree, just like any family tree, symbolises the aspects of genetics and inheritance which play a key role in how these conditions are passed on. Over 1.6 billion people of different ages, races, sex, and nationality, are represented by hearts of different colours, shapes and sizes. The hearts also symbolise the impact of the conditions on those close to the patient and can relate to heart (CVD) risk factors.
The Tree of Hearts combines different colours associated with lipids in the bloodstream, from yellow, orange, pink and red. These colours are all vibrant, positive, rich and engaging, just like the community we are …always together, engaged for change!

Agenda and speakers

The latest agenda can be downloaded below. Please note some exciting opportunities we have prepared for the in-person participants, incl. Carotid Artery Screening as on Friday and Saturday afternoon, Hypopressives Sessions on Saturday and Sunday morning and Dietary Expert Advice. Make sure to check out the Speakers’ bios to appreciate the incredible line up of experts and presenters at the event.
Save trees! Go paperless! Download your electronic copy!
Download Agenda


In-person Attendance

In-person registration includes:

  • Hotel accommodation (2 nights, single occupancy, breakfast included)
  • Onsite costs during the event

Travel costs will be reimbursed to a max amount of 500 EUR. For detailed terms and conditions please refer to the FH Europe Foundation Annual Network Meeting travel and reimbursement policy

We are pleased to invite one (1) person from each Network Member organization, who will officially represent the respective patient organization, and whose participation costs will be covered by FH Europe Foundation.

The in-person event will take place at the Leonardo Royal Hotel Amsterdam
Address: Paul van Vlissingenstraat 24 1096 BK, Amsterdam
Website: https://www.leonardoroyalhotelamsterdam.com/

For any additional information about the registration and travel reimbursements, please refer to our Registration, travel and reimbursement policy above.

In-person Registration deadline: 16th October 2023 until end of the day. Kindly ensure you complete your registration by this date to secure your spot at the event.

Registration cancellation: If you have registered for the event but find that you are unable to attend, we kindly request that you notify our event coordination team as soon as possible. Cancellation notifications should be sent via email to spela@fheurope.org.

Register to attend in-person
Online Participation

We warmly welcome anyone from our extensive Network to join us online. There are no limitations on space. Links to individual online sessions will be shared with you no later than 1 week before the event. Your inclusion is highly valued and anticipated.

Online Registration deadline: 6th November 2023 until end of the day. Kindly ensure you complete your registration by this date to secure your spot at the event.

Register for online participation

Photo Gallery

We have a selection of photos available from the event which can viewed below

View the Gallery

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Our Sponsors

We would like to thank our industry partners and sponsors! This meeting would not be possible without their support.