With this event slogan, we celebrate for the second year in a row the achievements of FH Europe Foundation Network and the wider community. We emphasise the importance of a multistakeholder collaboration and a meaningful engagement of patients, caregivers, advocates, scientists and researchers, healthcare professionals, industry representatives, policy makers, regulators, politicians and many other important players in the wider space of health and prevention. Simultaneously, it is a call to action to build and drive engagement. Our aim is to engage others and increase their involvement – as an individual, as a family group and as a community. In this way we will create the positive change we strive for on behalf of the patients and citizens we represent.
This is why we partner with FHchol, the FHEF Network Member organization in Austria. Together we hope to create an impactful programme, which builds on the experience and expertise of both organisations and helps activate and engage the local community of patients and experts from Vienna and Austria. Learn more about FHchol Austria here.
The visual theme is the Tree of Hearts by Sara Otter, our Artistic Ambassador. It depicts beautifully what FH Europe Foundation stands for. The diversity and the sheer number of people affected by familial lipid conditions, like FH, HoFH, elevated Lp(a) and FCS.
The tree, just like any family tree, symbolises the aspects of genetics and inheritance which play a key role in how these conditions are passed on. Over 1.6 billion people of different ages, races, sex, and nationality, are represented by hearts of different colours, shapes and sizes. The hearts also symbolise the impact of the conditions on those close to the patient and can relate to heart (CVD) risk factors.
The Tree of Hearts combines different colours associated with lipids in the bloodstream, from yellow, orange, pink and red. These colours are all vibrant, positive, rich and engaging, just like the community we are …always together, engaged for change!
The four disease-specific webinars, preceding the main event are open to the public and play a crucial role in enhancing health literacy about the four inherited lipid conditions in our scope – HeFH, HoFH, LP(a), and FCS, while helping expand our reach. This year the focus is around treatment and related issues. The exact webinars’ titles and speakers will be announced shortly. You can already book your space by registering now.
FHEF is pleased to invite one (1) person from each Network Member organisation, who will officially represent the respective patient organization, and whose participation costs will be covered by FH Europe Foundation. This includes:
Travel costs will be reimbursed to a maximum amount of 500 EUR. For participants coming from outside of Europe, additional arrangements can be made. For detailed terms and conditions please refer to the FH Europe Foundation Annual Network Meeting travel and reimbursement policy.
Registration deadline: Monday, 30 September 2024 until 11:59pm CET. Kindly ensure you complete your registration by this date to secure your spot at the event.
Registration cancellation: If you have registered for the event but find that you are unable to attend, we kindly request that you notify our event coordination team as soon as possible. Cancellation notifications should be sent via email to spela@fheurope.org.
For any additional information about the registration and travel reimbursements, please refer to our Registration, travel and reimbursement policy.
Members of the Network wishing to be part of the Vienna event but unable to participate in person are welcome to join online. There are no limitations on space. Links to individual online sessions will be shared with you no later than 1 week before the event. Your participation and engagement is highly valued and anticipated.
Online registration deadline: Wednesday, 6 November 2024 until 11:59pm CET. Kindly ensure you complete your registration by this date to secure your spot at the event.
Curious to know what the annual network meeting is about? Check out some of the curated sessions from the 2023 event in Amsterdam.
FH Europe Foundation annual meetings are possible thanks to the financial support of our sponsors and donors. In the past those organisations helped us make it happen:
The 2024 Annual Network Meeting is made possible through sponsorship and donations as well as funding from various projects. We would like to thank our committed partners who have already confirmed their support.
If you would like to explore opportunities to be part of this important project as a sponsor, please reach out to md@fheurope.org.
For any questions around the event and the registration please to contact Špela at spela@fheurope.org.
We look forward to engaging with you at the FH Europe Foundation Annual Network Meeting 2024!
