Magdalena Daccord, CEO of the FH Europe Foundation, has been selected by the World Health Organisation (WHO) as an expert member of the Guideline Development Group (GDG) on dyslipidaemia. She will contribute strictly in her individual and independent capacity, in full accordance with WHO rules, and not on behalf of any organisation. The WHO, the … Continue reading FH Europe CEO Joins WHO Expert Group on Dyslipidaemia
Every year, on the first Friday of November, our global community comes together to mark FCS Awareness Day, a day of solidarity, awareness raising and shared stories. It is a moment to shine a light on Familial Chylomicronaemia Syndrome (FCS), an ultra-rare familial lipid /metabolic disorder that profoundly shapes the lives of those who live … Continue reading Today is FCS Awareness Day 2025 - “From the Shadows into the Light”
October was a month of meaningful connection, elevated advocacy and cross-community momentum for the FH Europe Foundation. Representing patient voices at major conferences, launching awareness drives and advancing research equity, the organisation continued to advance cardiovascular prevention and rare lipid disorder care. Catch up on the key highlights from the October 2025 edition of the … Continue reading FHEF October 2025 Edition Heart Beat Newsletter