October was a month of meaningful connection, elevated advocacy and cross-community momentum for the FH Europe Foundation. Representing patient voices at major conferences, launching awareness drives and advancing research equity, the organisation continued to advance cardiovascular prevention and rare lipid disorder care. Catch up on the key highlights from the October 2025 edition of the … Continue reading FHEF October 2025 Edition Heart Beat Newsletter
Today, as we observe World Mental Health Day, we’re reminded that mental wellbeing is just as vital as physical health, especially for those living with rare conditions. For individuals with Familial Chylomicronaemia Syndrome (FCS) and Homozygous Familial Hypercholesterolaemia (HoFH), the challenges go far beyond clinical symptoms. The emotional toll of isolation, anxiety, and being misunderstood … Continue reading Mental Health and Rare Disease: The Hidden Struggle
September was a landmark month for the FH Europe Foundation and its community—filled with advocacy milestones, inspiring events, and global collaboration. From the European Parliament to community health checks across Europe, momentum for cardiovascular prevention and patient-led change continues to grow. Catch up on the key highlights from the September 2025 edition of the Heart … Continue reading FHEF September 2025 Edition Heart Beat Newsletter
