Every year, on the first Friday of November, our global community comes together to mark FCS Awareness Day, a day of solidarity, awareness raising and shared stories. It is a moment to shine a light on Familial Chylomicronaemia Syndrome (FCS), an ultra-rare familial lipid /metabolic disorder that profoundly shapes the lives of those who live … Continue reading Today is FCS Awareness Day 2025 - “From the Shadows into the Light”
October was a month of meaningful connection, elevated advocacy and cross-community momentum for the FH Europe Foundation. Representing patient voices at major conferences, launching awareness drives and advancing research equity, the organisation continued to advance cardiovascular prevention and rare lipid disorder care. Catch up on the key highlights from the October 2025 edition of the … Continue reading FHEF October 2025 Edition Heart Beat Newsletter
Today, as we observe World Mental Health Day, we’re reminded that mental wellbeing is just as vital as physical health, especially for those living with rare conditions. For individuals with Familial Chylomicronaemia Syndrome (FCS) and Homozygous Familial Hypercholesterolaemia (HoFH), the challenges go far beyond clinical symptoms. The emotional toll of isolation, anxiety, and being misunderstood … Continue reading Mental Health and Rare Disease: The Hidden Struggle
