FH Europe Foundation is proud to endorse the position paper titled "Strengthening Academic Biobanks and Patient Participation for Biomedical Research." This document, developed by organisations such as the German Biobank Node (GBN) and the German Biobank Alliance (GBA), highlights the critical role of centrally organised academic biobanks in advancing biomedical research and patient care.
As a community dedicated to supporting individuals and families affected by familial hyperlipidaemias (HeFH, HoFH, elevated Lp(a) and FCS) and other genetic lipid disorders, FH Europe Foundation recognises the immense value of biobanking in facilitating groundbreaking research. The position paper's emphasis on quality-assured biobanking, sustainable funding, and patient participation aligns perfectly with our mission to improve health outcomes through collaborative research and innovation.
We commend the authors for their insightful analysis and practical recommendations, which will undoubtedly enhance the efficiency and impact of biobanking initiatives. By fostering greater integration of biobanks into research projects and ensuring robust patient involvement, this position paper paves the way for more effective and patient-centred biomedical research.
FH Europe Foundation fully supports the call for increased cooperation with centrally organised academic biobanks and the adoption of participatory research approaches. We believe that these measures will not only advance scientific knowledge but also empower patients and their families by involving them directly in the research process.
We look forward to collaborating with the German Biobank Node, the German Biobank Alliance, and other stakeholders to implement the recommendations outlined in this position paper. Together, we can drive progress in biomedical research and improve the lives of those affected by genetic lipid disorders.
Read more about it here.