Published: September 10, 2024

Exclusive Webinar Trilogy on HoFH treatment

Together with the international expert speakers, we are delighted to invite you to this rare and exclusive trilogy of educational webinars, where we will explore the Horizons of HoFH Treatment: Current Options and Future Perspectives.

Whether you are a person living with HoFH, caring for someone with HoFH as a caregiver or as a medical practitioner, in each of the three specific webinars you will be able to deep-dive into the current standards and cutting-edge advancements in Homozygous Familial Hypercholesterolaemia (HoFH) treatment and gain invaluable insights from global experts, engage in interactive discussions, and get your questions answered by the panel of specialists and patient advocates.

What You Can Expect:

All three webinars will be co-moderated by Chyrel Lichaa, an internally recognised HoFH Patient Ambassador from Lebanon, and world-renowned paediatric cardiologist Prof. Albert Wiegman from the Netherlands.

1st webinar: 

Date & Time: 17 September 2024, 18.00 CEST

Featuring: Prof. Mafalda Bourbon from Portugal, Prof. Steve Humphries from the UK, HoFH Patient Ambassador Thanos Pallidis from Greece and HeFH Patient Ambassador and mother of HoFH Patient - Michlle Watts from the USA.

Topic Highlights: Genetics, gene therapies and novel approaches in HoFH management.

Register for the 1st webinar here.

2nd webinar:


Date & Time: 19 September 2024, 18.00 CEST

Featuring: Dr Julia Brandts from Germany, Dr Antonio Gallo from France, and Elsie Evans, HoFH Patient Ambassador from South Africa/UK.

Topic Highlights: Statins, ezetimibe, and apheresis – essential tools for managing HoFH.

Register for the 2nd webinar here.

3rd webinar:


Date & Time: 26 September 2024, 18.00 CEST

Featuring: Prof. Luis Masana from Spain, Prof. Raul Santos from Brazil, and Dr Antonio Gallo from France, together with Maria Nassif from France/Lebanon and Marwa Sadik from the UK, both HoFH Patient Ambassadors.

Topic Highlights: PCSK9 inhibitors, lomitapide, evinacumab, and other emerging therapies.

Register for the 3rd webinar here.

Each session will include interactive discussions with patient advocates, giving you the chance to hear real-world experiences and engage directly with leading experts.

Why Attend?

  • Stay up-to-date on the latest HoFH treatment advances.
  • Learn how personalized medicine is transforming care for HoFH patients.
  • Hear from patient advocates who will share their experiences and insights.
  • Participate in live Q&A sessions to get your most pressing questions answered.

Who Should Attend?
This webinar series is designed for patients with HoFH and HeFH, and their family members and caregivers, healthcare professionals, and researchers, who are passionate about advancing the treatment of HoFH.

We look forward to your participation in these important discussions that will shape the future of HoFH treatment.

 

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