FH Europe Foundation Joins BBMRI-ERIC Stakeholder Forum: Advancing Patient-Centric Research
FH Europe Foundation is thrilled to announce its official membership in the BBMRI-ERIC Stakeholder Forum as part of the Patients' and Citizens' Pillar. This milestone aligns with our mission to amplify patient voices and foster collaboration in the fight against familial hyperlipidaemiasand related cardiovascular and rare disorders.
About BBMRI-ERIC
The Biobanking and Biomolecular Resources Research Infrastructure - European Research Infrastructure Consortium (BBMRI-ERIC) is a European network dedicated to advancing biomedical research through biobanking. It connects key players, including researchers, industry leaders, patients, and biobankers, to foster collaboration and innovation. With 23 member countries and one international organization, BBMRI-ERIC is one of Europe’s largest research infrastructures.
A biobank is a repository for storing human biological samples—such as blood, tissue, cells, or DNA—alongside critical data related to those samples. These resources are essential for advancing health research and understanding complex diseases like heterozygous and homozygous familial hypercholesterolemia (HeFH and HoFH), elevated lipoprotein (a) (Lp(a)) and familial chylomicronaemia syndrome (FCS).
Why This Membership Is Important for Our Community
As part of this prestigious forum, FH Europe Foundation will work to advocate for equitable access to biobanking resources and innovative healthcare solutions.
At the same time, it will enhance awareness about the role of FH, elevated Lp(a) and FCS in cardiovascular health and its implications for European healthcare systems. We believe it will empower our ambassadors and advocates by ensuring their voices guide research priorities and healthcare policies.
Championing Patient Perspectives in Research Our role within the Patients' and Citizens' Pillar ensures that the voices of individuals living with familial hyperlipidaemias are heard in research initiatives. By advocating for patient-centric approaches, we aim to shape research that directly benefits our community.
Strengthening Collaboration Joining BBMRI-ERIC connects us with a vast network of researchers, clinicians, and stakeholders across Europe. This collaboration can drive innovation, particularly in the study of inherited lipid disorders, enabling breakthroughs that improve diagnosis and treatment.
Enhancing Research in Rare Diseases Access to large-scale biobank data is invaluable for studying rare conditions such as HoFH and FCS. Larger sample sizes allow for more robust studies, helping researchers identify patterns, refine diagnostics, and explore new treatments.
Promoting Standardization and Quality BBMRI-ERIC champions the standardization of sample collection, storage, and data management across its network. This ensures consistent, high-quality research outcomes, which are particularly critical in fields like inherited lipid disorders.
Strengthening Commitment to Personalised Prevention and Precision Medicine This membership underscores FH Europe Foundation’s dedication to advancing personalised prevention and precision medicine for lipid disorders. By collaborating with BBMRI-ERIC, we aim to accelerate the integration of genetic insights and biomarker data into tailored prevention strategies and individualized treatment plans. Such efforts are essential for addressing the unique needs of patients with familial hyperlipidaemias, paving the way for better outcomes and a more effective healthcare system.
Looking Ahead
This partnership marks a pivotal step in FH Europe Foundation’s mission to bridge cutting-edge research and patient needs, driving equitable healthcare solutions.
Stay updated on our journey with BBMRI-ERIC and share in our efforts to transform cardiovascular health research.
