Explore the highlights from FH Europe's April 2025 Heart Beat newsletter to catch up on the latest updates in cardiovascular health, policy, and patient advocacy:
- Launch of the Galaxy Forces United campaign for HoFH Awareness Day 2025, featuring a multilingual toolkit and webinar trilogy.
- FHEF’s upcoming participation in the EAS Congress 2025 with a dedicated session on elevated Lp(a).
- Support for the launch of the MEP Cardiovascular Health Group and the EACH Roadmap for the European Cardiovascular Health Plan.
- High-level meeting with MEP Romana Jerković to advance the Brussels Declaration on Lp(a).
- First-ever in-person Ambassador Programme training hosted in Cyprus with 35 participants from 14 countries.
- PERFECTO FH Consortium partner meeting and discussions with the Cypriot Ministry of Health.
- Observing World DNA Day and European Patients’ Rights Day with a focus on genetic literacy and patient-centred care.
- Patient story: Marius Scheepers’ powerful journey with HoFH from South Africa to the UK.
- Greece: LDL Greece and Rare Diseases Greece hosting an awareness event in Soufli.
- Ireland: Croí launches the Her Final Search campaign and opens the first Community Stroke Hub in Galway.
- Poland: EcoSerce takes part in Health Advocates 2025, highlighting cardiovascular care reform.
- Singapore: FH Connect 2025 community event for FH awareness and education.
- Cyprus: Creation of the national Patients’ Advocate Office to strengthen patient rights.
- Global Heart Hub: GHH Grow webinar on adapting to the evolving social media landscape.
- New publications highlight:
• Barriers and facilitators to genetic testing for FH
• Benefits of early ezetimibe use after heart attacks
• IAS–FHEF implementation strategies to improve FH care
- Advocacy webinar series on the EU Council Conclusions and the European Cardiovascular Health Plan.
- Upcoming HTA Regulation webinar on promoting patient-centred EU health policies.
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