Explore the highlights from FH Europe's February 2025 Heart Beat newsletter to catch up on the latest news and events in the world of cardiovascular health:
- More than you can imagine: Celebrating Rare Disease Day 2025 with various activities and webinar
- FH Europe's Young Ambassadors among EURORDIS’ Rare Is Beautiful Photo Award 2025 finalists
- Members of our community attended the EURORDIS Black Pearl Awards
- FH Europe Foundation representing the Network at the European Parliament Event on Rare Disease Day
- A Step Forward for HoFH Patients in Lebanon
- Preparing for Lp(a) Awareness Day 2025
- Another milestone reached in joint efforts with the EACH community to secure a Cardiovascular Health Plan at the Polish Cardiac Society Conference, held under the Polish EU Presidency
- FH Europe Foundation’s strategy and team meeting
- Welcoming two new members to our team
- Czechia’s ČAKO releasing a new patient brochure Diet and Cooking in CVD Prevention
- France’s ANHET.F sharing recordings from the French Senate on FH pediatric screening
- Hungary’s SZÍVSN successfully concluding the SZÍVSN Helps Ópályi! campaign
- Ireland’s Croí raising awareness on inherited high cholesterol
- World Heart Assembly achieving a major milestone for rare diseases
- EURORDIS’ Rare Barometer findings revealing barriers to disability recognition and social participation
- European Parliament establishing a new intergroup on cancer and rare diseases
- European Atherosclerosis Society – EAS' AtheroTalk podcast on Lp(a) with Prof. Florian Kronenberg and an advanced course in rare lipid disorders in Croatia
- World Heart Federation – advocating for cardiovascular care for women and children and ensuring universal access to safe, high-quality medical products
- New publication on Living with Elevated Lipoprotein(a) Levels: The Experiences of Patients and Caregivers
- Knowledge hub: Understanding AI in Healthcare – Key takeaways from the EU’s AI Act
- Important dates you won’t want to miss!
Read the Full Newsletter.
