Explore the highlights from FH Europe's March 2025 Heart Beat newsletter to catch up on the latest news and events in the world of cardiovascular health:
- Reflection on the fourth Lp(a) Awareness Day
- First-Ever Global Summit on Elevated Lp(a) Addressed Addressed One of the Biggest Unmet Needs in Cardiovascular Health
- Preparations for the upcoming HoFH Awareness Day.
- FH Europe Foundation’s participation in the Impact of Rare Diseases event in Brussels.
- Public advocacy webinars on the Council Conclusions and the European Cardiovascular Health Plan.
- Reflections from the inspiring HoFH Expert Meeting in Milan.
- Study on World Obesity Day exploring the link between cholesterol, weight, and familial hypercholesterolemia.
- Accelerating action for women's heart health on International Women’s Day.
- Endorsement of the position paper on academic biobanks and patient participation.
- Announcement of the first in-person ambassador programme training.
- Patient story: Renate Kaal-Poppelars’ journey with Lp(a).
- Austria: FHChol hosting a memory walk in honour of Gaby Hanauer-Mader.
- Czechia: ČAKO promoting cardiovascular health at Prague Hospital.
- Ireland: Croí launching PhD scholarships for stroke research.
- Poland: EcoSerce’s major success in FH screening through collaboration.
- Latvia: ParSirdi.lv joining the global effort to raise awareness of Lipoprotein(a).
- The Netherlands: VrouwenHart highlighting Lp(a) and women's cardiovascular health.
- Singapore: FHCARE organizing Lipid and Lipoprotein(a) Awareness Week to advance knowledge.
- Spain: Fundación Hipercolesterolemia Familiar supporting the premiere of a documentary on neonatal screening and hosting the 10th Familial Hypercholesterolaemia Symposium.
- Global Heart Hub publishing a manifesto in the IFCC Journal and winning a global cardiovascular award.
- Critical Medicines Act to strengthen access to essential medicines in the EU.
- Data Saves Lives sharing updates on the EHDS Regulation.
- EACH launching the MEP Cardiovascular Health Group at the European Parliament.
- EU4Health Civil Society Alliance raising concerns over delays in the 2025 work programme and launching the “We Are Here” campaign for a patient-centered future.
- EURORDIS marking the completion of the European Health Data Space adoption while warning against reduced patient involvement in medicines regulation.
- World Heart Federation marking the first-ever World Adherence Day.
- Knowledge hub: Upcoming HTAR training sessions in May
- Important dates you won’t want to miss!
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