Explore the highlights from FH Europe's May and June 2025 Heart Beat newsletter to catch up on the latest news and events in the world of cardiovascular health:
- Now Available: HoFH 360° Webinar Trilogy Recordings
- Call for Entries – Design the 2025 HoFH Awareness Day Logo
- Brussels International Declaration on Lp(a) Officially Published – Endorse it
- Public Advocacy Webinars: EU Action on Cardiovascular Health
- Help Secure EU Funding for Cardiovascular Health
- A historic milestone for the global rare disease community: The Resolution on Rare Diseases – adopted!
- FH Europe Foundation at the EURORDIS Membership Meeting in Riga
- International Patient Voices Unite in Florence on Cholesterol and CVD
- FH Europe Foundation at the SATY Conference in Helsinki
- FHEF Ambassadors to Champion Lived Experience at the 2025 Global Forum on Value in Health
- Living with Inherited Lipid Disorders — At the Heart of MEP Sokol’s Event
- FH Europe Foundation to Partner with the World Orphan Drug Congress 2025
- A powerful patient story from Luke Elias
- Austria’s FHchol Austria hosting webinars on FCS and personalised cholesterol therapy, and offering free Lp(a) testing at the World Congress on Clinical Lipidology
- Greece’s LDL Greece organising an HoFH awareness event in Soufli with expert talks, patient stories, and the Silk Art Museum lighting
- Singapore’s FHCARE Singapore holding the FH Connect 2025 event focused on education, genetic testing, and managing FH
- Global Heart Hub launching the 2025 Heart Failure Awareness Campaign and the Unite for Change policy roadmap
- The European Institute of Women’s Health unveiling the EU Women’s Health Strategy for gender-sensitive healthcare
- The European Atherosclerosis Society publishing a new consensus on clinical staging for metabolic disorders
- The European Patients’ Forum advocating for sustainable health NGO funding, recruiting PROACT patient representatives, and campaigning to protect patient voting rights at the EMA
- EURORDIS advancing advocacy at EMM 2025 in Riga, pushing to prioritise rare diseases in the EU Life Sciences Strategy, and continuing the #KeepPatientsVoting campaign
- The European Society of Cardiology announcing ESC Congress 2025 with the theme “Cardiology Beyond Borders”
- The World Heart Federation highlighting the impact of obesity stigma and alcohol on cardiovascular risk, and calling for stronger policies
- Understanding the European Health Data Space (EHDS)
- Important dates you won’t want to miss!
Read the Full Newsletter.
Subscribe to the Heart Beat News.
