Explore the highlights from FH Europe's Spring 2024 Heart Beat newsletter to catch up on the latest news and events in the world of cardiovascular health:
Launch of the first-ever HoFH Awareness Day campaign
Invitation to join the HoFH Logo Competition and participate in The Impact of HoFH survey
FH Europe Foundation’s activities on the Patient Engagement Forum
PerMed FH Project meeting in Lyon
Patient advocacy by FH Europe Foundation at the EAS Paediatric Symposium
Lp(a) International Task Force meeting in Lyon
FH Europe Foundation at the EAS Annual Congress 2024
Patient Ambassador Maria Nassif advocating for HoFH at the HealthTech for Patients Event
Highlighting the importance of rare diseases at the World Health Assembly side event
Welcoming the EPP’s pledge to improve cardiovascular health in Europe
Key Insights from the Europe Rare Disease Summit
Austria’s FHchol Vegan FH cooking class, involvement in the Long Night of Science, and online FCS meeting
Croatia’s largest public health campaign promoting awareness of CVD risk factors
A patient carer’s story on living with FCS in Estonia
Hungary’s SZÍVSN’s dedication to education and support
Ireland’s Croí bringing civil society and industry together to highlight the urgent need for a national heart strategy
Italy’s AISC celebrating their 10th anniversary
Italy’s ANIF article on FH diagnosis published in Osservatorio Malattie Rare
Latvia’s Par Holesterinu promoting awareness of FH and the urgency of detection on the big screen
Poland’s EcoSerce hosting a workshop for FH patients and meeting at the Polish Senate to discuss the need for systematic screening implementation for FH
UK’s Global Heart Hub holding roundtable discussions, presenting findings on unhealthy cholesterol, and inviting to a webinar
Marwa’s story on living with HoFH
EURORDIS’ open letter to the European Commission and survey results
EPF’s Leadership Event and AMG 2024, and receiving an Operating Grant to advance patient advocacy
World Heart Federation’s invitation to an exclusive World Heart Day launch event
