Published: September 4, 2024

FHEF Summer 2024 Edition Newsletter

Explore the highlights from FH Europe's Summer 2024 Heart Beat newsletter to catch up on the latest news and events in the world of cardiovascular health:   

  • Welcoming two new members to our Network.
  • Advocacy statement for access to lifesaving treatments for HoFH in Germany.
  • Pushing for a comprehensive EU Cardiovascular Health Plan.
  • Highlights from FH Awareness Day activities.
  • Preparing for the HoFH Webinar Trilogy—don’t miss out!
  • Reminder: Participate in the HoFH Logo Competition.
  • Invitation to join the FHEF Annual Meeting in Vienna.
  • How to register for the Rare Disease Patient Passport.
  • Austria’s FHchol’s FH Symposium.
  • Croatian Dyslipidaemia Patient Organisation's Run4FH event.
  • Recap of the Czech Republic’s ČAKO’s 9th Annual FH Week.
  • SZÍVSN Hungary’s engaging summer activities.
  • UK Global Heart Hub’s upcoming Webinar on Heart Valve—join in!
  • Introduction to our new member, FH Australia.
  • Germany’s "Healthy Heart Law" initiative.
  • Webinar on World Patient Safety Day by the World Patients Alliance.
  • Key insights from the FHSC Steering Committee Meeting at EAS 2024.
  • EURORDIS’ Rare Barometer survey and Black Pearl Awards nominations.
  • EACH advocating for an EU-wide Cardiovascular Health Plan.
  • LEEFH’s new Lp(a) Explainer Video—learn more!
  • WHF’s call to action: Sign a global petition and attend a special workshop.
  • New hope for patients with Familial Chylomicronaemia Syndrome (FCS).
  • Plus, important dates you won’t want to miss!

 

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