Invitation to join the Europe Rare Disease Summit 2024

Date: 14 February 2024

Location: In-person event in Madrid, Spain (Venue: Hotel ILUNION Pío XII)

Mark your calendars for the Europe Rare Disease Summit 2024, hosted by Bamberg Health on February 14 in Madrid. FH Europe Foundation has been invited to participate as an institutional collaborator and our CEO Magdalena Daccord, and Rare Diseases Project Manager, Jill Prawer, are among over 45 speakers, that will be addressing different topics over the day and will encompass government plans, access and financing, clinical research and innovation, artificial intelligence, and data.

Joining forces from all corners of Europe, this prestigious event brings together leading researchers, healthcare professionals, patient advocates, policymakers, industry experts, and rare disease patients and families with the aim to:

1. Empower Patients: Putting patients at the heart of our efforts, we strive to enhance their access to quality care and support, while advocating for their rights and unique challenges.
2. Advance Research: Renowned scientists will present groundbreaking discoveries, fostering cross-disciplinary collaboration to propel rare disease research forward.
3. Build Collaborative Networks: A platform for stakeholders to connect, exchange ideas, and form strategic partnerships, bridging gaps in research, treatment, and support.
4. Influence Policy:  Seeking to drive positive changes and better support the rare disease community by engaging policymakers.

Tailored for rare disease advocates, healthcare professionals, industry leaders, and more, the summit is a hub for knowledge exchange and networking.

The event will include dynamic lineup of keynote speeches, interactive workshops, panel discussions and networking opportunities. Opportunity to share experiences, learn from experts, and inspire change.

The summit is free for patients and network members, and others can attend at no cost with an invitation from the FH Europe Foundation. You will find the invite and more information here.

Don't miss this opportunity to be part of a pivotal dialogue shaping the future of healthcare.