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January 30, 2024

Rare Disease Day 29th February 2024

FH Europe Foundation supports Rare Disease Day, observed annually on the final day of February. This year marks an extraordinary occurrence, as it falls on the rarest day, Thursday, February 29th. FH Europe Foundation advocates for the two rare familial hyperlipidaemias, Homozygous Familial Hypercholesterolaemia (HoFH) and Familial Chylomicronaemia Syndrome (FCS) which share many commonalities with […]
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January 29, 2024

Invitation to join the Europe Rare Disease Summit 2024

Date: 14 February 2024 Location: In-person event in Madrid, Spain (Venue: Hotel ILUNION Pío XII) Mark your calendars for the Europe Rare Disease Summit 2024, hosted by Bamberg Health on February 14 in Madrid. FH Europe Foundation has been invited to participate as an institutional collaborator and our CEO Magdalena Daccord, and Rare Diseases Project […]
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January 11, 2024

PerMed FH, the latest research project on precision medicine for familial hypercholesterolaemia, officially launched.

PerMed FH is an innovative project, aiming to identify precision medicine tools which will help diagnose early and manage correctly familial hypercholesterolaemia (FH).  Amsterdam, the Netherlands - 2024.01.11 The Instituto Nacional de Saúde Doutor Ricardo Jorge (INSA), in Portugal, through the Cardiovascular Research Group of its Department of Health Promotion and Prevention of Non-Communicable Diseases […]
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December 22, 2023

FHEF December Edition Newsletter

Explore the highlights from FH Europe's December 2023 Heart Beat newsletter to catch up on the latest news and events in the world of cardiovascular health:    FH Europe Foundation's Seasonal greetings FH Europe Foundation joining EACH in the call for a Cardiovascular Health Plan for Europe at the European Parliament Tips from FH Europe […]
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