Latest news

September 17, 2024

"Get It Right, Make It Safe": Celebrating World Patient Safety and Apheresis Awareness Days Together

Apheresis Awareness Day is held annually on the third Tuesday in September, while World Patient Safety Day is observed every year on September 17. In 2024, those two days occur on the same day. And both are very relevant and important to our community of individuals and families living with inherited hyperlipidemia. This year the […]

September 10, 2024

Exclusive Webinar Trilogy on HoFH treatment

Together with the international expert speakers, we are delighted to invite you to this rare and exclusive trilogy of educational webinars, where we will explore the Horizons of HoFH Treatment: Current Options and Future Perspectives. Whether you are a person living with HoFH, caring for someone with HoFH as a caregiver or as a medical […]

September 4, 2024

FHEF Summer 2024 Edition Newsletter

Explore the highlights from FH Europe's Summer 2024 Heart Beat newsletter to catch up on the latest news and events in the world of cardiovascular health: Welcoming two new members to our Network. Advocacy statement for access to lifesaving treatments for HoFH in Germany. Pushing for a comprehensive EU Cardiovascular Health Plan. Highlights from […]

August 7, 2024

FHEF issues a statement advocating for access to lifesaving treatments for HoFH in Germany

Advocating for Access to Lifesaving Treatment for HoFH Patients in Germany The FH Europe Foundation (FHEF), the international network of over 30 patient organisations, dedicated to supporting individuals and families affected by familial lipid disorders, has issued an urgent statement to the Federal Joint Committee (G-BA) in response to the decision on ANGPTL3 inhibitor (Evinacumab) […]

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