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October 27, 2023

FHEF October Edition Newsletter

Explore the highlights from FH Europe's October 2023 Heart Beat newsletter to catch up on the latest news and events in the world of cardiovascular health: FHEF's Annual network meeting coming up The »unmet needs« webinar series on FH, HoFH, elevated Lp(a) and FCS Invitation to join the #FCS10gFatChallenge and our webinar on FCS Our […]

October 27, 2023

Take the FCS 10g Fat Challenge

Friday 3rd November 2023 Familial Chylomicronaemia Syndrome The first Friday of November is Familial Chylomicronaemia Syndrome (FCS) Awareness Day, this year on 3rd November. This year we are delighted to be working in partnership with our UK-based network member, Action FCS, to raise awareness of FCS, and to amplify the under-estimated impact that living with […]

October 20, 2023

FCS Awareness Day 2023

The first Friday of November is Familial Chylomicronaemia Syndrome (FCS) Awareness Day. This year we are delighted to be working in partnership with our UK-based network member, Action FCS, to raise awareness of FCS, and to amplify the under-estimated impact that living with the condition has on the lives of patients and those around them. […]

October 15, 2023

Living with HoFH – Maria´s Story

A Story of Resilience, Education, and Advocacy My name is Maria Nassif, I’m 30 years old, Lebanese living in France. I got diagnosed with HoFH when I was 3 years old when xanthomas started showing up on various parts of my body - elbows, wrists, knees, you name it. I have a very high LDL […]

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