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August 31, 2023

FHEF Summer Edition Newsletter

Read our special summer 2023 edition of FH Europe Foundation's Heart Beat newsletter for the latest news and events: FH Europe is now a Dutch Foundation FH Awareness Day – People like Us campaign has kicked off! Explore our advocacy efforts at the Science Summit at United Nations General Assembly (UNGA78) The Annual Network meeting […]
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July 20, 2023

New Guidance from the IAS Defines Best Practices in FH Care

Medical experts and patient advocates recommend screening, genetic testing and patient-centred treatment plans for genetic form of high cholesterol known as familial hypercholesterolaemia (FH). Amsterdam, July 20, 2023 -- New guidance from medical experts at the International Atherosclerosis Society, in collaboration with patient advocates, presents new clinical and implementation strategies for treating the 35 million […]
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July 15, 2023

Patient Story - Living with HoFH

ELSIE EVANS Meet Elsie Evans, known to her friends and family as Cindy. Elsie is a dedicated teacher, working in schools for special needs children. She is also FH Europe´s Ambassador Program Manager, a volunteer at HEART UK, a technology enthusiatst, loves to travel and is a great coffee lover. She is also rare disease […]
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