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April 16, 2024

Patient Story: Living with FCS in Estonia

The youngest FCS Ambassador advocating in Estonia On 14th April, our youngest patient ambassador, Elisete Poobus (6 years old), along with her family, was invited to the 30th Anniversary conference of the Estonian Phenylketonuria Association, to provide an insight into living with FCS (Familial Chylomicronaemia Syndrome).   Elisete’s mother, Teevi Poobus, gave a short presentation explaining how Elisete […]

March 29, 2024

FHEF March 2024 Edition Newsletter

Explore the highlights from FH Europe's March 2024 Heart Beat newsletter to catch up on the latest news and events in the world of cardiovascular health: Our powerful campaign for the Lp(a) Awareness Day World Obesity Day: an important study on obesity and CVD Welcoming our new team member, Renate Kaal-Poppelaars Our special […]

March 24, 2024

Actively reducing cardiovascular disease– global Lp(a) Awareness Day 24 March 2024

Elevated lipoprotein (a) – an important risk factor for cardiovascular disease Today, 24 March, is Lp(a) Awareness Day. Elevated lipoprotein(a), or Lp(a) concentration, is an inherited lipid condition and an independent, very significant risk factor for cardiovascular disease. While elevated Lp(a) levels can be diagnosed through a simple blood test, it is estimated that one […]

March 22, 2024

My story of living with elevated Lp(a)

On the eve of the Lp(a) Awareness Day, we have this personal blog prepared for you by Marc Rijken, one of our Ambassadors and Members of the Lp(a) International Task Force. Marc shares his powerful story and a call to action to get to know more about an invisible risk factor which affects one in […]

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