Webinar: Tips and tricks for cooking without fat

Navigating Familial Chylomicronaemia Syndrome (FCS) Dietary Challenges

Thursday 23rd November 18.00 - 19.00 CET

Familial Chylomicronaemia Syndrome (FCS) severely affects the body's ability to process dietary fat. Though rare (1-2 individuals per million globally), recent estimates indicate a potentially wider impact (1:100,000 to 1:1,000,000) due to underdiagnosis. Managing FCS requires strict adherence to dietary guidelines: a fat intake of over 20g, limited simple sugars, and no alcohol. Non-compliance heightens the risk of severe abdominal pain and life-threatening pancreatitis for affected individuals.

The webinar provided valuable insights and practical solutions for managing FCS-related dietary challenges. It was led by Jill Prawer, Rare Diseases Project Manager at FH Europe Foundation, aiming to increase awareness and understanding of the difficulties individuals face adhering to the FCS diet.

The webinar featured expert perspectives:

• Prof. Kirsten Holven provided an overview of FCS, shedding light on the condition itself and its dietary implications.
• Jill Prawer, a patient diagnosed with FCS at the age of 2, shared her personal experiences and strategies in navigating the challenges of maintaining the prescribed diet.
• Emma Print, a former chef on super yachts, demonstrated quick and easy hot lunch options suitable for on-the-go consumption within FCS dietary guidelines.

You can download the recipes here.

The comprehensive discussion encompassed not only the intricacies of FCS but also included insights relevant to those living with homozygous FH (HoFH), who also must adhere to a strict, very low-fat diet.

By delving into the complexities of FCS and offering practical solutions, this webinar aimed to broaden awareness and understanding while providing helpful tips and tricks for effectively managing the dietary challenges associated with the syndrome.

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