Latest news

May 4, 2024

1st International HoFH Awareness Day

Uniting for HoFH Awareness on May the 4th May the 4th is special! Not only because it is the official day of celebration for Star Wars fans around the world but, this year, it marks the launch of the first awareness day for Homozygous Familial Hypercholesterolaemia (HoFH). HoFH is a rare and severe genetic disorder […]

April 30, 2024

Quality of Life in HoFH Survey

Knowledge about how HoFH impacts people’s lives is scarce. There have been limited studies conducted to understand how this ultra-rare condition affects diagnosed individuals and their family members, who often act as caregivers. Having identified this knowledge gap, back in 2023 FH Europe was pleased to be involved in the development of a survey supporting […]

April 25, 2024

HoFH Awareness Day Logo Competition

Are you ready to make a difference and showcase your creative talents? We, the HoFH community under the umbrella of FH Europe Foundation, call on all artists, designers, and creative enthusiasts from all walks of life to participate in our exciting logo competition for HoFH Awareness Day! Whether you're a seasoned designer or simply passionate […]

April 24, 2024

My story of living with HoFH

As we are approaching the first ever international HoFH Awareness Day (May 4th), we are delighted to share a story of Marwa Sadeek, an HoFH Patient and one of the active Ambassadors behind the awareness day campaign. “Hi, I'm Marwa Sadeek. I'm 38, and I live in London, UK. I work as a medical interpreter […]

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