Latest news

January 27, 2025

FH-EARLY: A Bold Leap Toward Revolutionising Diagnosis and Co-Management of Familial Hypercholesterolemia

Lisbon, Portugal – January 24, 2025. The groundbreaking research project, “New Strategies for The Early Diagnosis, Risk Stratification, and Co-Management of Familial Hypercholesterolemia (FH-EARLY)”, officially launched on January 1, 2025, ushering in a new era of precision medicine and patient-centred care for familial hypercholesterolemia (FH). Running until December 31, 2028, FH-EARLY is supported under the […]
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January 14, 2025

FH Europe Foundation Patient Ambassadors to Attend the EURORDIS Black Pearl Awards

FH Europe Foundation is excited to announce our attendance at the prestigious EURORDIS Black Pearl Awards on Monday, February 24, 2025, in Brussels. This annual event, taking place in February, which also marks the occasion of Rare Disease Day, celebrates the outstanding achievements of people living with a rare disease, along with those who go […]
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January 16, 2025

A Milestone for Rare Diseases: The WHA Resolution and Its Implications for Global Health

In the global health arena, few issues highlight the intersection of equity, inclusion, and perseverance as vividly as the challenges faced by those living with rare diseases. With over 300 million individuals affected worldwide, the upcoming World Health Assembly (WHA) resolution on rare diseases represents a pivotal moment to integrate their needs into the broader […]
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January 6, 2025

Get Ready for the 2025 EU HTA Changes: What Patients Need to Know

The upcoming EU Health Technology Assessment (HTA) Regulation, set to take effect on January 12, 2025, marks a significant shift in how medicines and health technologies are evaluated across Europe. For patients, this means faster access to life-saving treatments through streamlined and coordinated assessments, enhanced transparency with clear summaries of decisions, and a central role […]
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