February was a month of remembrance, advocacy, and renewed momentum across our community. From Rare Disease Day to European policy engagement and research collaboration, we continued advancing earlier detection, equitable care, and stronger patient representation in FH and rare lipid disorders.
Catch up on the key highlights from the February 2026 edition of Heart Beat:
FH Europe Foundation News:
- Rare Disease Day 2026: Focus on equitable access to diagnosis, treatment, and lifelong care.
- Lp(a) Awareness: Community calls and preparations ahead of 24 March.
- Black Pearl Awards: Representation at EURORDIS’ flagship rare disease event.
- Dyslipidaemia Webinar Series Follow-up: Recordings available from the dyslipidaemia guideline sessions.
Ambassador Programme News:
- Action FCS Patient & Carer Event: Ambassadors joined the FCS community in Birmingham for shared learning and peer support.
- HoFH Family Day: Strengthening peer support and patient advocacy in London.
Research & Community Engagement:
- FH EARLY Annual Assembly: Progress review and coordination meeting in Lisbon.
- PERFECTO Final Event: Join us to Prevent the Preventable in Brussels (27–28 April 2026)
- PerMed FH in the Spotlight: Precision medicine advances featured in recent media.
Network News:
- Austria: FHchol Austria – FH Festsymposiu
- Czechia: CAKO – Memorandum of Understanding with ILEP
- Netherlands: Stichting VrouwenHart – 5 Years of Impact
- Spain: Familial Hypercholesterolaemia Foundation – XI Symposium
Partner News:
- European Society of Cardiology –Conference on shaping the future of Prevention through AI and Data
- European Patients’ Forum – EU Competitiveness Roundtable: Strengthening patient advocacy in EU health policy.
- EURORDIS – Interactive Webinar on supporting patient engagement on access to essential medicines.
News from around the World:
- Croatia: Public campaign promoting awareness of hypertension and cholestero at Samobor Carnival.
Knowledge Hub:
- Session on understanding Personalised Prevention: Online discussion on innovation and early detection (10 March, online).
Events:
- 4 March: World Obesity Day
- 8 March: International Women’s Day
- 24 March: Lp(a) Awareness Day
- 7 April: World Health Day
- 27–28 April: PERFECTO Final Event – Brussels & online
