Published: March 31, 2026

FHEF March 2026 Edition Heart Beat Newsletter

March was a month of awareness, collaboration, and forward-looking advocacy across our community. With a strong focus on Lp(a) Awareness Day, policy engagement, and ongoing research initiatives, we continued driving progress toward earlier detection, improved care pathways, and stronger patient voices in FH and rare lipid disorders.

Catch up on the key highlights from the March 2026 edition of Heart Beat:

FH Europe Foundation News:

  • Lp(a) Awareness Day 2026: Thank you for joining our campaign
  • Lp(a) International Taskforce: Website and social media channels launch
  • FOKUS Event: Engagement in discussions on cardiovascular prevention and strengthening collaboration across stakeholders
  • Food for Thought Session at Roche Diagnostics Headquarters: Strategic dialogue on innovation, diagnostics, and improving patient pathways
  • SAFEHEART & Beyond – Croatian Model Event: Showcasing national best practices and advancing FH care through the Croatian model

Ambassador Programme News:

  • 5th Heart Failure Roundatable in Nuremberg:  Expert discussions on improving heart failure care and patient outcomes
  • SIGLipid event: Engagement with the scientific community on lipid disorders and advances in care
  • World Adherence Day: Advocacy efforts highlighting the importance of treatment adherence in cardiovascular health
  • Dutch CardioVascular Alliance meeting in the Dutch Parliament: Representation in national policy dialogue on cardiovascular health and prevention

Research & Community Engagement:

  • PERFECTO Final Event: Registration open, join us in Brussels (27–28 April 2026)

Network News:

  • China: FH China – A Month of Strong Progress in Advocacy and Research
  • Czechia: CAKO – Memorandum of Understanding with ILEP
  • Greece: LDL Greece –Raising Awareness Through Media and Medical Engagement
  • Netherlands: Stichting VrouwenHart – Harteraad Joins Forces with Hartstichting
  • Spain: Familial Hypercholesterolaemia Foundation – Dr. Pedro Mata´s nomination for the Diario Médico Admirable Award
  • Global: Global Heart Hub – Women´s Heart Health Action Agenda launched

Partner News:

  • European Society of Cardiology: New patient version of ESC Guidelines on pregnancy
  • EP Permed: The Science of You podcast
  • World Heart Federation: WHF Roadmap Integrated Care

News from around the World:

  • US: New US guidelines on dyslipidaemia management

Knowledge Hub:

  • FHEF Dyslipidaemia webinar trilogy: follow up – Live Q&A sessions available on website
  • European Diabetes Forum (EUDF): Know your numbers webinar
  • Global Heart Hub: Clinical research resources

Events:

  • 7 April: World Health Day
  • 19 April: World Liver Day
  • 27–28 April: PERFECTO Final Event – Brussels & online
  • 4 May: HoFH Awareness Day
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