April maintained strong momentum across our community, with growing visibility for HoFH following the successful PERFECTO closing event.
Looking ahead, key opportunities—from EU policy engagement to upcoming webinars and the EAS Congress—signal a dynamic period focused on collaboration, awareness, and impact.
Catch up on the key highlights from the April 2026 edition of Heart Beat:
FH Europe Foundation News:
- HoFH Awareness Day 2026: Sustaining momentum beyond one day and development of upcoming webinars
- EU health checks Call for Evidence: act now for early detection of inherited lipid disorders
- Joint statement on Investing in Health: A Strategic Priority for Europe
- FHEF at EAS Congress: Connecting science and community
Ambassador Programme News:
- PERFECTO – Ambassador training in-person: Strengthening advocacy skills in Brussels
- PERFECTO – Closing event: Ambassadors highlight the impact of FH
Research & Community Engagement:
- PERFECTO closing event: A milestone for collaboration and impact, full report to follow
Network News:
- China: FH China – Six Actions for HoFH Awareness Day
- Czechia: ČAKO – Bringing Preventive Health Screenings to Key National Institutions
- Italy: AISC –AISC Invites Patients to Join BIOTOOL-CHF Survey
- Netherlands: Stichting VrouwenHart – Stichting VrouwenHart contributes to European EXIT-CVD project
- Spain: Familial Hypercholesterolaemia Foundation – XI FH Symposium Videos Now Available Online
News from around the World:
- Croatia: First-ever comprehensive cardiovascular screenings in the European Parliament: Croatian prevention model in focus
- France: The power of advocacy
Knowledge Hub:
- EAS AtheroTalk: episode with Magdalena Daccord
- European Patients’ Rights Day 2026 – 20th edition: register for online attendance
Events:
- 4 May: HoFH Awareness Day
- 4-8 May: European Mental Health Week
- 16-17 May: World Heart Summit
- 18-23 May: World Health Assembly (WHA79)
- 19-22 May: Europe Biobank Week Congress
- 23 May: 9th EAS Paediatric Familial Hypercholesterolaemia Symposium
- 24-27 May: 94th EAS Congress, EAS
