HoFH Awareness Day Campaign Kick-off meeting

Are you ready to unite for HoFH Awareness?

The launch of the first-ever HoFH Awareness Day on May the 4^th is approaching with the speed of light and we've been working tirelessly to prepare for this important event. From educational resources to community outreach initiatives, we are committed to making HoFH Awareness Day a resounding success.

🌎 But we can't and don’t want to do it alone.

United with the World Heart Federation, the International Atherosclerosis Society, the European Atherosclerosis Society, the Family Heart Foundation and the Global Heart Hub, we now INVITE YOU to get ready to channel your inner Jedi and unite against the dark side of HoFH.

🌠 REGISTER and JOIN our Galaxy online meeting and find out more about what the first-ever HoFH Awareness Day is all about and how you can contribute, participate, get empowered or simply help us spread the word.

WHEN?

• Thursday, 25 April 2024, at 13.00 CEST. Register HERE.
• Thursday, 25 April 2024, at 18.00 CEST. Register HERE.

🚀 Here’s what awaits you in our campaign kick-off online meeting:

1. Setting the stage for the HoFH Awareness Day campaign- the what, why, who, when and how.
2. Exploring the campaign toolkit - your lightsaber for fighting against the unawareness of HoFH.
3. Tips for reaching distant corners of awareness.
4. Your ideas are like constellations - unique and brilliant. We invite you to share them and contribute!

The meeting will be led by our super trio Emma Print, FHEF Community Engagement Manager, Chyrel Lichaa, HoFH Galactic Ambassador and Project Manager and Elsie Evans, FHEF Ambassador Programme Project Manager.

Join us! 🌟 Let’s embark on an interstellar journey to make Homozygous Familial Hypercholesterolaemia (HoFH) awareness day a resounding success.

As you may know, HoFH (Homozygous Familial Hypercholesterolaemia) affects individuals from birth and significantly increases the risk of heart disease already early in life. Despite its severity and the urgency to act, HoFH remains largely underdiagnosed and misunderstood. Even more surprisingly as HoFH occurs in families affected with FH, a very common inherited high cholesterol disorder.

That's why it's crucial for us to come together to raise awareness and support those living with this condition. And for that reason, we have chosen a special day and a special slogan - Unite for HoFH Awareness: One Galaxy, One Heart!

HoFH Awareness Day 2024 launch activities are supported by grant funding from Arrowhead Pharmaceuticals, Chiesi and Ultragenyx.