Latest news

February 17, 2025

A Major Milestone for the Rare Disease Community

We are following up once again with some exciting news. After several sessions of intense discussion, debates, and negotiations, the Member States of the World Health Organisation Executive Board made a decision to recommend the adoption of the World Health Assembly Resolution on Rare Diseases to the 78th WHA in May! The discussion was resumed […]

January 31, 2025

FHEF January 2025 Edition Heart Beat Newsletter

Explore the highlights from FH Europe's January 2025 Heart Beat newsletter to catch up on the latest news and events in the world of cardiovascular health: FH-EARLY Project Launch: A €7.25M Horizon Europe-funded initiative aiming to revolutionize FH diagnosis and care. New Year, New Initiatives: FH Europe signs the coalition for the WHA Resolution and […]

January 23, 2025

Croatia's Dyslipidemia Patients Association Joins FH Europe Foundation: A New Beacon of Hope in FH Awareness

FH Europe Foundation is thrilled to welcome the Croatian Dyslipidemia Patients Association into our vibrant community network of patient organisations. This exciting addition marks a significant milestone in our collective efforts to combat cardiovascular diseases and raise awareness about familial hyperlipidaemias. Founded on 11th December 2023, the Croatian Dyslipidemia Patients Association is spearheaded by Iva […]

January 27, 2025

FH-EARLY: A Bold Leap Toward Revolutionising Diagnosis and Co-Management of Familial Hypercholesterolemia

Lisbon, Portugal – January 24, 2025. The groundbreaking research project, “New Strategies for The Early Diagnosis, Risk Stratification, and Co-Management of Familial Hypercholesterolemia (FH-EARLY)”, officially launched on January 1, 2025, ushering in a new era of precision medicine and patient-centred care for familial hypercholesterolemia (FH). Running until December 31, 2028, FH-EARLY is supported under the […]

1 2 3 … 19 Next »

Join our mailing list to receive our monthly newsletter - Heart Beat