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November 7, 2025

Today is FCS Awareness Day 2025 - “From the Shadows into the Light”

Every year, on the first Friday of November, our global community comes together to mark FCS Awareness Day, a day of solidarity, awareness raising and shared stories. It is a moment to shine a light on Familial Chylomicronaemia Syndrome (FCS), an ultra-rare familial lipid /metabolic disorder that profoundly shapes the lives of those who live […]
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October 31, 2025

FHEF October 2025 Edition Heart Beat Newsletter

October was a month of meaningful connection, elevated advocacy and cross-community momentum for the FH Europe Foundation. Representing patient voices at major conferences, launching awareness drives and advancing research equity, the organisation continued to advance cardiovascular prevention and rare lipid disorder care. Catch up on the key highlights from the October 2025 edition of the […]
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October 10, 2025

Mental Health and Rare Disease: The Hidden Struggle

Today, as we observe World Mental Health Day, we’re reminded that mental wellbeing is just as vital as physical health, especially for those living with rare conditions. For individuals with Familial Chylomicronaemia Syndrome (FCS) and Homozygous Familial Hypercholesterolaemia (HoFH), the challenges go far beyond clinical symptoms. The emotional toll of isolation, anxiety, and being misunderstood […]
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October 10, 2025

Mind and Heart: Why Mental Health Matters for People Living with Cardiovascular Risk and Inherited Lipid Disorders

A silent connection between the mind and the heart Every beat of the heart is influenced not only by biology, but by our thoughts, emotions, and sense of safety. Mental health, as how we think, feel, and cope, is inseparable from cardiovascular health. Yet for many living with inherited lipid disorders or other lifelong cardiovascular […]
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