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November 2, 2026

FHEF October 2026 Edition Heart Beat Newsletter

October was a month of connection, advocacy and scientific progress across the FH Europe Foundation community. From patient voices shaping discussions at international conferences to new research, awareness initiatives and preparations for the Annual Network Meeting in Dublin, our network continued to advance patient-centred care and cardiovascular prevention. Catch up on the key highlights from […]
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November 2, 2026

Lp(a)HORIZON: FH Europe Foundation Shares Novartis Patient Community Statement

FH Europe Foundation is sharing an official communication from Novartis concerning the discontinuation of its pelacarsen development programme. We also provide background on the Lp(a)HORIZON announcement and outline how FHEF is independently engaging with its community and scientific experts to support informed discussion and next steps. Novartis statement to the patient community On 16 October […]
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November 2, 2026

Beyond individual organs: what MOSAiC 2026 means for patients and research

Reflections from Elsie Evans, Patient Ambassador representing the FH Europe Foundation community On 26–27 October 2026, specialists, researchers, regulators, industry representatives, journal editors and patient advocates came together at the MOSAIC NASH forum in Washington, DC. The aim was to explore how research can better reflect the connections between cardiovascular, kidney, liver and metabolic health, […]
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October 28, 2026

Celebrating 15 years of FHchol Austria: prevention begins with families

FHchol Austria has celebrated 15 years of supporting people and families affected by familial hypercholesterolaemia (FH) and other inherited lipid conditions. The organisation was founded on 14 October 2011 by Gabriele “Gaby” Hanauer-Mader and fellow advocates. It grew from the self-help group Familial Hypercholesterolaemia in Children and Adolescents, which Gaby  established in 2004 with the […]
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