Latest news

June 2, 2026

FHEF is part of the European Regional Task Force on Rare Diseases

At FH Europe Foundation, we believe that meaningful change begins by listening—truly listening—to the communities we represent. That is why we are proud to be part of an important new initiative led by EURORDIS, in collaboration with Rare Diseases International (RDI): the establishment of a European Regional Task Force on Rare Diseases. This is more […]

June 2, 2026

FHEF May 2026 Edition Heart Beat Newsletter

May was a month of strong global engagement and policy momentum across our community, with key milestones at the World Heart Summit, World Health Assembly, and EAS Congress reinforcing the importance of early detection and prevention. Looking ahead, growing EU policy discussions and continued collaboration across research, advocacy, and patient engagement signal an important period […]

May 27, 2026

FH Europe Foundation welcomes two major EAS consensus statements advancing lifelong cardiovascular prevention and lipid care

We are pleased to announce the publication of two major European Atherosclerosis Society (EAS) consensus statements: Familial hypercholesterolaemia in children and adolescents Lipid clinics worldwide: harmonisation and guidance on how to optimally organize and fund Both statements were published simultaneously on 25 May 2026 and presented during a joint session at the EAS Annual Congress […]

May 20, 2026

Welcome to FH Irak as a new member of the FHEF Network

FH Europe Foundation is pleased to welcome FH Iraq as a new member of the FHEF Network. This important step strengthens our shared commitment to improving the lives of people and families affected by familial hypercholesterolaemia (FH) and other inherited lipid disorders through collaboration, education, advocacy, and a stronger patient voice. Based in Iraq, FH […]

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