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September 1, 2026

FHEF August 2026 Edition Heart Beat Newsletter

Copilot said: August was a month of action, collaboration, and growing momentum across the FH Europe Foundation network as preparations intensified for FH Awareness Day, EU Screening Week, and World Heart Day. From community-led awareness campaigns and screening initiatives to new research findings, advocacy efforts, and international partnerships, the global FH community continues to drive […]

August 24, 2026

FHEF convenes partners in joint letter supporting the first EU Screening Week

FH Europe Foundation convened leading scientific and advocacy organisations working in inherited lipid disorders and atherosclerotic cardiovascular disease (ASCVD) to welcome the first-ever EU Screening Week, taking place from 28 September to 4 October 2026, and offer their collective support for its implementation across EU Member States. At FHEF’s initiative, a joint letter was sent […]

August 20, 2026

International community turns FH awareness into action

As FH Awareness Day approaches, the FH Europe Foundation community is connecting local action with a powerful policy moment for early detection and prevention. Every minute, somewhere in the world, a child is born with familial hypercholesterolaemia (FH). Each birth is another opportunity for early detection and lifelong prevention, but only if health systems, professionals, […]

August 17, 2026

My reflections from the 2026 Amgen Advocacy Summit

A short note before I begin: this is not intended as a promotion of Amgen or of the Summit. It is my personal reflection on four days of meetings, discussions and learning, viewed through the lens of a patient organisation working in cardiovascular health, inherited lipid disorders, early detection and prevention. Amgen is one of […]

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