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October 6, 2026

FHEF September 2026 Edition Heart Beat Newsletter

September was a month of action across the FH community, marked by FH Awareness Day, EU Screening Week, and growing momentum for earlier detection and prevention. Discover the latest advocacy updates, research, and opportunities to get involved. Catch up on the key highlights from the September 2026 edition of Heart Beat: FH Europe Foundation News: […]
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October 5, 2026

The EU Biotech Act: Why Patient Voices Must Be Heard

Biotechnology is helping to change how health conditions are diagnosed, treated and managed. For people and families affected by inherited lipid conditions, scientific progress may bring new tests, treatments and hope for the future. What is it? Biotechnology uses living cells, genes or other parts of nature to develop new medicines, tests and treatments. Put […]
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October 5, 2026

Why the EPF Youth Congress Matters for Our Community

Young people living with inherited lipid conditions and rare diseases bring a unique perspective to healthcare, research and policy. They understand first-hand the realities of growing up with a chronic condition, navigating healthcare systems, managing treatment, balancing education or work, and planning for the future. For many years, patient organisations have worked hard to ensure […]
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October 5, 2026

Turning patient experience into evidence: Reflections from the EUPATI Annual General Meeting 2026

Anticipation for the EUPATI Annual General Meeting 2026 began for me in a rather unexpected place: a passport control queue at Brussels Airport. After five hours waiting to get through passport control, I was still determined not to miss the opening discussions. Fortunately, the event was being streamed online, so I joined the first sessions from […]
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