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October 10, 2025

Mental Health and Rare Disease: The Hidden Struggle

Today, as we observe World Mental Health Day, we’re reminded that mental wellbeing is just as vital as physical health, especially for those living with rare conditions. For individuals with Familial Chylomicronaemia Syndrome (FCS) and Homozygous Familial Hypercholesterolaemia (HoFH), the challenges go far beyond clinical symptoms. The emotional toll of isolation, anxiety, and being misunderstood […]
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October 10, 2025

Mind and Heart: Why Mental Health Matters for People Living with Cardiovascular Risk and Inherited Lipid Disorders

A silent connection between the mind and the heart Every beat of the heart is influenced not only by biology, but by our thoughts, emotions, and sense of safety. Mental health, as how we think, feel, and cope, is inseparable from cardiovascular health. Yet for many living with inherited lipid disorders or other lifelong cardiovascular […]
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October 3, 2025

FHEF September 2025 Edition Heart Beat Newsletter

September was a landmark month for the FH Europe Foundation and its community—filled with advocacy milestones, inspiring events, and global collaboration. From the European Parliament to community health checks across Europe, momentum for cardiovascular prevention and patient-led change continues to grow. Catch up on the key highlights from the September 2025 edition of the Heart […]
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September 30, 2025

A Decade of Patient-Led Advocacy Comes Full Circle at the European Parliament

On 25 September 2025, the European Parliament in Brussels became the stage for a decisive moment in the fight against cardiovascular disease. The high-level meeting, “Cardiovascular Prevention as the Cornerstone of a Competitive Europe – Scaling Up Lipid Screening to Secure Next Generations,” organised by FH Europe Foundation, was co-hosted by MEP Romana Jerković, Chair […]
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