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June 30, 2026

FHEF June 2026 Edition Heart Beat Newsletter

June was a month of advocacy, collaboration, and progress across the FH Europe Foundation network, with important developments in EU policy, rare disease advocacy, research, and patient engagement. As summer begins, our community continues to drive forward early detection, prevention, and equitable care for inherited lipid disorders. Catch up on the key highlights from the […]
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June 30, 2026

FHEF Patient Ambassadors: Ensuring the Patient Voice is Seen, Heard and Shaping the Future

Across Europe and beyond, FH Europe Foundation (FHEF) Patient Ambassadors are increasingly taking their place on international stages—bringing the lived experience of inherited lipid disorders to scientific congresses, policy discussions, industry forums and educational events. Their voices are helping to shape conversations, influence decisions and ensure that patients remain at the heart of research, innovation […]
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June 30, 2026

Early Screening for Inherited Lipid Disorders: Thank You for Taking Action

The advocacy work to ensure that cardiovascular health checks in Europe include early screening for inherited lipid disorders continues—and thanks to your involvement, the momentum is growing. Over the past weeks, following our call to action, we have been pleased to see patient organisation leaders, individual patient ambassadors, clinical leaders, researchers and community advocates reaching […]
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June 30, 2026

Lp(a) Update 2026: Strengthening Collaboration for Cardiovascular Prevention in Germany

The Lp(a) International Task Force (ITF) and FH Europe Foundation (FHEF) were delighted to participate in Lp(a) Update 2026 organised by the German Society for Lipidology (DGFL – Lipid-Liga). The event took place in Munich, on 26 and 27 June, 2026. Bringing together leading national and international experts, the two-day meeting provided an outstanding platform for scientific exchange, collaboration and implementation, focusing […]
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