Latest news

February 5, 2026

Reflecting on 2025: Key Milestones for Our Community

As we look back on 2025, we’re proud to share an overview of the significant milestones that shaped the year for our community. This year brought important progress across our core conditions: heterozygous familial hypercholesterolaemia (HeFH), homozygous familial hypercholesterolaemia (HoFH), elevated Lp(a), and familial chylomicronaemia syndrome (FCS).  We’ve compiled a document that tracks the major regulatory updates, clinical trial results, events, and community projects from the […]
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February 4, 2026

New network member - FH Australia

The FH Europe Foundation is delighted to welcome FH Australia as the newest member of our international network of patient organisations dedicated to improving the lives of individuals and families affected by inherited lipid conditions HeFH, HoFH, elevated lipoprotein(a) and FCS.  FH Australia brings extraordinary strength to the global movement: a lived experience–led, patient-centred organisation deeply embedded within Australia’s national research, clinical leadership, and advocacy landscape. Their commitment […]
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January 30, 2026

FHEF January 2026 Edition Heart Beat Newsletter

January marked a focused start to 2026, with FH Europe Foundation advancing patient education, research coordination, and policy engagement to turn evidence and strategy into everyday impact. Catch up on the key highlights from the January 2026 edition of the Heart Beat newsletter: FH Europe Foundation News: ESC–EAS Dyslipidaemia Guidelines: Launch of a free three-part […]
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January 29, 2026

Awareness Days and Events Calendar 2026

Discover the key awareness days and events shaping the year ahead. Our colour-coded calendar highlights major campaigns and initiatives where your involvement matters most, along with relevant awareness moments and health-focused days worth knowing about. The calendar will be updated regularly as new events and opportunities arise. Open and download the 2026 Awareness Days and […]
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