Latest news

October 28, 2026

Celebrating 15 years of FHchol Austria: prevention begins with families

FHchol Austria has celebrated 15 years of supporting people and families affected by familial hypercholesterolaemia (FH) and other inherited lipid conditions. The organisation was founded on 14 October 2011 by Gabriele “Gaby” Hanauer-Mader and fellow advocates. It grew from the self-help group Familial Hypercholesterolaemia in Children and Adolescents, which Gaby  established in 2004 with the […]
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October 26, 2026

The European Rare Disease Blueprint: Why It Matters for the FH Community

FH Europe Foundation was proud to contribute to the development of the European Blueprint for Rare Diseases through participation in the European Regional Task Force. This work represents an important opportunity to ensure that the experiences of people living with inherited lipid conditions are reflected in future European and global health policies. While FH Europe […]
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October 15, 2026

France launches a national roadmap to strengthen cardiovascular prevention

France’s new 2026–2030 roadmap strengthens the national commitment to cardiovascular prevention, alongside a significant legal milestone: childhood screening explicitly including familial hypercholesterolaemia (FH). Announced on 14 October 2026, the roadmap aims to prevent cardiovascular and cerebrovascular diseases, identify risk factors earlier and improve support for people most at risk. According to the French Ministry of Health, […]
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October 12, 2026

EU Council Recommendation on Cardiovascular Health Checks and Early Screening

One Action Before 31 October: Help Shape the Future of Cardiovascular Prevention in Europe The coming weeks could be a defining moment for early detection and prevention of inherited cardiovascular conditions across Europe. FH Europe Foundation is calling on patient organisations, Ambassadors, healthcare professionals and advocates to take one concrete action before 31 October to […]
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