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June 30, 2026

FHEF Patient Ambassadors: Ensuring the Patient Voice is Seen, Heard and Shaping the Future

Across Europe and beyond, FH Europe Foundation (FHEF) Patient Ambassadors are increasingly taking their place on international stages—bringing the lived experience of inherited lipid disorders to scientific congresses, policy discussions, industry forums and educational events. Their voices are helping to shape conversations, influence decisions and ensure that patients remain at the heart of research, innovation […]
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June 30, 2026

Early Screening for Inherited Lipid Disorders: Thank You for Taking Action

The advocacy work to ensure that cardiovascular health checks in Europe include early screening for inherited lipid disorders continues—and thanks to your involvement, the momentum is growing. Over the past weeks, following our call to action, we have been pleased to see patient organisation leaders, individual patient ambassadors, clinical leaders, researchers and community advocates reaching […]
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June 30, 2026

Lp(a) Update 2026: Strengthening Collaboration for Cardiovascular Prevention in Germany

The Lp(a) International Task Force (ITF) and FH Europe Foundation (FHEF) were delighted to participate in Lp(a) Update 2026 organised by the German Society for Lipidology (DGFL – Lipid-Liga). The event took place in Munich, on 26 and 27 June, 2026. Bringing together leading national and international experts, the two-day meeting provided an outstanding platform for scientific exchange, collaboration and implementation, focusing […]
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June 30, 2026

PERFECTO: The mission to prevent the preventable continues

On 31 May 2026, the PERFECTO project officially came to an end after 30 months of collaboration dedicated to advancing paediatric screening for Familial Hypercholesterolaemia (FH) across Europe. Coordinated by FH Europe Foundation and co-funded by the EU4Health Programme, PERFECTO was built around a clear public health ambition: to support the early detection of FH in […]
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