Latest news

January 23, 2025

Croatia's Dyslipidemia Patients Association Joins FH Europe Foundation: A New Beacon of Hope in FH Awareness

FH Europe Foundation is thrilled to welcome the Croatian Dyslipidemia Patients Association into our vibrant community network of patient organisations. This exciting addition marks a significant milestone in our collective efforts to combat cardiovascular diseases and raise awareness about familial hyperlipidaemias. Founded on 11th December 2023, the Croatian Dyslipidemia Patients Association is spearheaded by Iva […]

January 27, 2025

FH-EARLY: A Bold Leap Toward Revolutionising Diagnosis and Co-Management of Familial Hypercholesterolemia

Lisbon, Portugal – January 24, 2025. The groundbreaking research project, “New Strategies for The Early Diagnosis, Risk Stratification, and Co-Management of Familial Hypercholesterolemia (FH-EARLY)”, officially launched on January 1, 2025, ushering in a new era of precision medicine and patient-centred care for familial hypercholesterolemia (FH). Running until December 31, 2028, FH-EARLY is supported under the […]

January 14, 2025

FH Europe Foundation Patient Ambassadors to Attend the EURORDIS Black Pearl Awards

FH Europe Foundation is excited to announce our attendance at the prestigious EURORDIS Black Pearl Awards on Monday, February 24, 2025, in Brussels. This annual event, taking place in February, which also marks the occasion of Rare Disease Day, celebrates the outstanding achievements of people living with a rare disease, along with those who go […]

January 16, 2025

A Milestone for Rare Diseases: The WHA Resolution and Its Implications for Global Health

In the global health arena, few issues highlight the intersection of equity, inclusion, and perseverance as vividly as the challenges faced by those living with rare diseases. With over 300 million individuals affected worldwide, the upcoming World Health Assembly (WHA) resolution on rare diseases represents a pivotal moment to integrate their needs into the broader […]

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