Latest news

September 19, 2023

Apheresis Awareness Day 2023

FH Europe Foundation proud to support Apheresis Awareness Day 2023! We want to raise awareness about the benefits of apheresis therapy in managing conditions like homozygous familial hypercholesterolemia (HoFH) and high Lp(a) as well as the rare condition familial chylomicronemia syndrome (FCS). We want to highlight the crucial role of apheresis in reducing the risk […]
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August 31, 2023

FHEF Summer Edition Newsletter

Read our special summer 2023 edition of FH Europe Foundation's Heart Beat newsletter for the latest news and events: FH Europe is now a Dutch Foundation FH Awareness Day – People like Us campaign has kicked off! Explore our advocacy efforts at the Science Summit at United Nations General Assembly (UNGA78) The Annual Network meeting […]
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July 20, 2023

New Guidance from the IAS Defines Best Practices in FH Care

Medical experts and patient advocates recommend screening, genetic testing and patient-centred treatment plans for genetic form of high cholesterol known as familial hypercholesterolaemia (FH). Amsterdam, July 20, 2023 -- New guidance from medical experts at the International Atherosclerosis Society, in collaboration with patient advocates, presents new clinical and implementation strategies for treating the 35 million […]
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July 15, 2023

Patient Story - Living with HoFH

ELSIE EVANS Meet Elsie Evans, known to her friends and family as Cindy. Elsie is a dedicated teacher, working in schools for special needs children. She is also FH Europe´s Ambassador Program Manager, a volunteer at HEART UK, a technology enthusiatst, loves to travel and is a great coffee lover. She is also rare disease […]
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