Latest news

October 10, 2023

A patient-centred vision for unmet medical need

FH Europe Foundation Ambassadors have collaborated as part of the European Patients’ Forum (EPF) Taskforce on unmet needs, specifically the definition of 'unmet medical needs' and how it will shape the future of healthcare. This urgent and important issue arose in the context of the reform of the EU pharmaceutical legislation. In the spring of […]

October 8, 2023

Advocating for FH and early screening in Italy

On 6th October 2023, FH Europe Foundation Community Engagement Manager, Emma Print, was invited to speak at the Italian Ministry of Health as part of AISC’s 9th Annual Congress. The topic was “FH - What is the Real and Undetected Issue? How can we Raise Awareness?” Emma spoke to an audience of 250 patients and […]

October 4, 2023

HoFH and FCS included in the Genomics England research

On October 2nd, 2023, Genomics England released a list of more than 200 rare conditions that will be screened as part of “The Generation Study”, which will commence in National Health Service (NHS) hospitals in late 2023. The study aims to discover rare genetic conditions earlier. By leveraging the latest advancements in genomic research, the […]

September 29, 2023

FHEF September 2023 Edition Newsletter

Explore the highlights from FH Europe's September 2023 Heart Beat newsletter to catch up on the latest news and events in the world of cardiovascular health: : FH Awareness Day 2023 and The "People Like Us" campaign World Heart Day celebration and the FH Europe Foundation’s initiative to raise awareness on digital platforms Global Advocacy […]

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