Latest news

April 30, 2024

Quality of Life in HoFH Survey

Knowledge about how HoFH impacts people’s lives is scarce. There have been limited studies conducted to understand how this ultra-rare condition affects diagnosed individuals and their family members, who often act as caregivers. Having identified this knowledge gap, back in 2023 FH Europe was pleased to be involved in the development of a survey supporting […]

April 25, 2024

HoFH Awareness Day Logo Competition

Are you ready to make a difference and showcase your creative talents? We, the HoFH community under the umbrella of FH Europe Foundation, call on all artists, designers, and creative enthusiasts from all walks of life to participate in our exciting logo competition for HoFH Awareness Day! Whether you're a seasoned designer or simply passionate […]

April 24, 2024

My story of living with HoFH

As we are approaching the first ever international HoFH Awareness Day (May 4th), we are delighted to share a story of Marwa Sadeek, an HoFH Patient and one of the active Ambassadors behind the awareness day campaign. “Hi, I'm Marwa Sadeek. I'm 38, and I live in London, UK. I work as a medical interpreter […]

April 17, 2024

HoFH Awareness Day Campaign Kick-off meeting

Are you ready to unite for HoFH Awareness? The launch of the first-ever HoFH Awareness Day on May the 4th is approaching with the speed of light and we've been working tirelessly to prepare for this important event. From educational resources to community outreach initiatives, we are committed to making HoFH Awareness Day a resounding success. 🌎 But we can't and don’t […]

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