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February 25, 2025

A Step Forward for HoFH Patients in Lebanon: A Meeting with the Presidential Office

For patients living with Homozygous Familial Hypercholesterolaemia (HoFH) in Lebanon, access to life-saving treatment has been an ongoing challenge. Due to the country’s ongoing crises, LDL apheresis—the only available treatment for HoFH patients in Lebanon—was discontinued for a period, then resumed inconsistently. This uncertainty placed patients at high risk for premature cardiac events and severe […]

February 20, 2025

Celebrating Rare Disease Champions at the EURORDIS Black Pearl Awards

FH Europe Foundation is excited to announce our attendance at the prestigious EURORDIS Black Pearl Awards on Monday, 24 February 2025, in Brussels. This annual event, taking place in February, which also marks the occasion of Rare Disease Day, celebrates the outstanding achievements of people living with a rare disease, along with those who go […]

February 17, 2025

A Major Milestone for the Rare Disease Community

We are following up once again with some exciting news. After several sessions of intense discussion, debates, and negotiations, the Member States of the World Health Organisation Executive Board made a decision to recommend the adoption of the World Health Assembly Resolution on Rare Diseases to the 78th WHA in May! The discussion was resumed […]

January 31, 2025

FHEF January 2025 Edition Heart Beat Newsletter

Explore the highlights from FH Europe's January 2025 Heart Beat newsletter to catch up on the latest news and events in the world of cardiovascular health: FH-EARLY Project Launch: A €7.25M Horizon Europe-funded initiative aiming to revolutionize FH diagnosis and care. New Year, New Initiatives: FH Europe signs the coalition for the WHA Resolution and […]

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