Latest news

May 17, 2024

Advocating for HoFH at HealthTech for Patients Event

Patient Ambassador Maria Nassif participated in the 4th edition of HealthTech for Patients event on May 16, 2024, hosted by HealthTech for Care. She shared her journey with HoFH, highlighting mental health challenges and daily struggles of living with a chronic illness. Maria emphasized the need for early diagnosis, personalized treatment, universal access to care, […]
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May 4, 2024

1st International HoFH Awareness Day

Uniting for HoFH Awareness on May the 4th May the 4th is special! Not only because it is the official day of celebration for Star Wars fans around the world but, this year, it marks the launch of the first awareness day for Homozygous Familial Hypercholesterolaemia (HoFH). HoFH is a rare and severe genetic disorder […]
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April 30, 2024

Quality of Life in HoFH Survey

Knowledge about how HoFH impacts people’s lives is scarce. There have been limited studies conducted to understand how this ultra-rare condition affects diagnosed individuals and their family members, who often act as caregivers. Having identified this knowledge gap, back in 2023 FH Europe was pleased to be involved in the development of a survey supporting […]
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April 25, 2024

HoFH Awareness Day Logo Competition

Are you ready to make a difference and showcase your creative talents? We, the HoFH community under the umbrella of FH Europe Foundation, call on all artists, designers, and creative enthusiasts from all walks of life to participate in our exciting logo competition for HoFH Awareness Day! Whether you're a seasoned designer or simply passionate […]
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