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March 15, 2025

FH Europe Foundation Endorses BBMRI-ERIC Position Paper on Academic Biobanks and Patient Participation

FH Europe Foundation is proud to endorse the position paper titled "Strengthening Academic Biobanks and Patient Participation for Biomedical Research." This document, developed by organisations such as the German Biobank Node (GBN) and the German Biobank Alliance (GBA), highlights the critical role of centrally organised academic biobanks in advancing biomedical research and patient care. As […]
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March 5, 2025

No More Waiting: Action Needed for People with Rare Diseases!

The message was loud and clear at the Impact of Rare Diseases: More Than You Can Imagine event in the European Parliament on March 5: people living with rare diseases, including those with HoFH and FCS, cannot afford to wait any longer for faster diagnoses, better treatments, and equitable care. Co-hosted by MEPs Stine Bosse […]
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March 4, 2025

Beyond Cholesterol: Why Weight Matters Even with Genetic High Cholesterol

Today, on March 4, World Obesity Day, we explore an important health connection that affects millions worldwide. For those living with familial hypercholesterolaemia (FH) – a genetic condition causing high LDL cholesterol – emerging research offers new insights into how weight affects their heart health.  People with FH often focus primarily on their LDL cholesterol […]
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February 28, 2025

FHEF February 2025 Edition Heart Beat Newsletter

Explore the highlights from FH Europe's February 2025 Heart Beat newsletter to catch up on the latest news and events in the world of cardiovascular health:  More than you can imagine: Celebrating Rare Disease Day 2025 with various activities and webinar  FH Europe's Young Ambassadors among EURORDIS’ Rare Is Beautiful Photo Award 2025 finalists  Members […]
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