Latest news

May 27, 2024

EU Elections - a decisive moment for health in the European Union

The upcoming European elections will be decisive for the future of the European Union and its plans in facing and addressing the growing global challenges, including the all important health. Between 6–9 June 2024, millions of Europeans will go to the polls and their votes will shape the future of the Union. Members of the […]
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May 17, 2024

Advocating for HoFH at HealthTech for Patients Event

Patient Ambassador Maria Nassif participated in the 4th edition of HealthTech for Patients event on May 16, 2024, hosted by HealthTech for Care. She shared her journey with HoFH, highlighting mental health challenges and daily struggles of living with a chronic illness. Maria emphasized the need for early diagnosis, personalized treatment, universal access to care, […]
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May 4, 2024

1st International HoFH Awareness Day

Uniting for HoFH Awareness on May the 4th May the 4th is special! Not only because it is the official day of celebration for Star Wars fans around the world but, this year, it marks the launch of the first awareness day for Homozygous Familial Hypercholesterolaemia (HoFH). HoFH is a rare and severe genetic disorder […]
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April 30, 2024

Quality of Life in HoFH Survey

Knowledge about how HoFH impacts people’s lives is scarce. There have been limited studies conducted to understand how this ultra-rare condition affects diagnosed individuals and their family members, who often act as caregivers. Having identified this knowledge gap, back in 2023 FH Europe was pleased to be involved in the development of a survey supporting […]
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