Published: September 29, 2023

FHEF September 2023 Edition Newsletter

Explore the highlights from FH Europe's September 2023 Heart Beat newsletter to catch up on the latest news and events in the world of cardiovascular health: :

  • FH Awareness Day 2023 and The "People Like Us" campaign 
  • World Heart Day celebration and the FH Europe Foundation’s initiative to raise awareness on digital platforms 
  • Global Advocacy at UNGA78 Science Summit 
  • FH Europe organizing 4 disease-specific webinars covering FH, HoFH, LP(a), and FCS in preparation for the Annual Network meeting. 
  • FH Europe Foundation hosting its 1st Annual Network Meeting in Amsterdam 
  • Patient Ambassador Programme Progress: Advisory Group formed 
  • FCS Awareness Day webinars organised by Action FCS and FH Europe  
  • Apheresis Awareness Day 
  • FHchol Austria: emphasizing the importance of early screenings by hosting a symposium titled "Invisible Heritage, Familial Hypercholesterolemia" 
  • Bulgarian Patients Forum Federation: addressing accomplishments in treating FH patients  
  • France - Anhet.f celebrating its 10th Anniversary with a special event on World Heart Day. 
  • Hungary - SZÍVSN continues to make impressive strides in enhancing heart health in Hungary 
  • Croí Ireland Research: Croí Heart & Stroke Charity supported World FH Awareness Day  
  • Italy’s A.N.I.F. joining FH Awareness campaign 
  • FH Norge's Pioneering Effort on International Day of Hereditary High Cholesterol   
  • Slovenia’s ZaSrce addressing FH in national media 
  • Global Heart Hub Partnering with the SDA Bocconi School of Management to present a three-day training course in Rome, Italy 
  • Croatia’s Run4FH and Rock4FH 
  • New outcomes from the LIBerate-HeFH trial 
  • Early study results of a randomized clinical trial for reducing steady-state Lp(a) levels without modulating plasminogen activity in humans 
  • European Patient’s Forum – Label 2 Enable webinar 
  • EURORDIS’s changes in the leadership and exciting opportunities at #EURORDISOpenAcademy2024 
  • Upcoming events you shouldn't miss

Read the Full Newsletter

 

Share:
Back to all News