Latest news

April 25, 2024

HoFH Awareness Day Logo Competition

Are you ready to make a difference and showcase your creative talents? We, the HoFH community under the umbrella of FH Europe Foundation, call on all artists, designers, and creative enthusiasts from all walks of life to participate in our exciting logo competition for HoFH Awareness Day! Whether you're a seasoned designer or simply passionate […]

April 24, 2024

My story of living with HoFH

As we are approaching the first ever international HoFH Awareness Day (May 4th), we are delighted to share a story of Marwa Sadeek, an HoFH Patient and one of the active Ambassadors behind the awareness day campaign. “Hi, I'm Marwa Sadeek. I'm 38, and I live in London, UK. I work as a medical interpreter […]

April 17, 2024

HoFH Awareness Day Campaign Kick-off meeting

Are you ready to unite for HoFH Awareness? The launch of the first-ever HoFH Awareness Day on May the 4th is approaching with the speed of light and we've been working tirelessly to prepare for this important event. From educational resources to community outreach initiatives, we are committed to making HoFH Awareness Day a resounding success. 🌎 But we can't and don’t […]

April 16, 2024

Patient Story: Living with FCS in Estonia

The youngest FCS Ambassador advocating in Estonia On 14th April, our youngest patient ambassador, Elisete Poobus (6 years old), along with her family, was invited to the 30th Anniversary conference of the Estonian Phenylketonuria Association, to provide an insight into living with FCS (Familial Chylomicronaemia Syndrome).   Elisete’s mother, Teevi Poobus, gave a short presentation explaining how Elisete […]

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