Latest news

October 5, 2026

Why the EPF Youth Congress Matters for Our Community

Young people living with inherited lipid conditions and rare diseases bring a unique perspective to healthcare, research and policy. They understand first-hand the realities of growing up with a chronic condition, navigating healthcare systems, managing treatment, balancing education or work, and planning for the future. For many years, patient organisations have worked hard to ensure […]

October 5, 2026

Turning patient experience into evidence: Reflections from the EUPATI Annual General Meeting 2026

Anticipation for the EUPATI Annual General Meeting 2026 began for me in a rather unexpected place: a passport control queue at Brussels Airport. After five hours waiting to get through passport control, I was still determined not to miss the opening discussions. Fortunately, the event was being streamed online, so I joined the first sessions from […]

September 29, 2026

European Commission publishes proposal on council recommendation for cardiovascular health checks

On 28 September 2026, the European Commission published its Proposal for a Council Recommendation on cardiovascular health checks: an EU approach to early detection and screening. For FH Europe Foundation and our community, this is an important milestone and there is much to welcome. The proposal takes forward one of the flagship initiatives of the […]

September 21, 2026

FH Awareness Day 2026 - Webinar Trilogy: from Cholesterol to Treatment

To mark FH Awareness Day 2026, FH Europe Foundation is launching a new three-part webinar series designed to help people better understand cholesterol, familial hypercholesterolaemia (FH), other lipid-related cardiovascular risk factors, and the treatment options available today and emerging for tomorrow. Starting with the basics and progressing from understanding cholesterol, to making sense of test […]

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