Latest news

August 20, 2026

International community turns FH awareness into action

As FH Awareness Day approaches, the FH Europe Foundation community is connecting local action with a powerful policy moment for early detection and prevention. Every minute, somewhere in the world, a child is born with familial hypercholesterolaemia (FH). Each birth is another opportunity for early detection and lifelong prevention, but only if health systems, professionals, […]

August 20, 2026

Get involved in the first-ever EU Screening Week

The first-ever EU Screening Week will take place from 28 September to 4 October 2026, creating a Europe-wide moment for prevention, screening and early detection. The initiative follows FH Awareness Day on 24 September and coincides with World Heart Day on 29 September, offering our community a timely opportunity to connect awareness of inherited cardiovascular […]

August 17, 2026

My reflections from the 2026 Amgen Advocacy Summit

A short note before I begin: this is not intended as a promotion of Amgen or of the Summit. It is my personal reflection on four days of meetings, discussions and learning, viewed through the lens of a patient organisation working in cardiovascular health, inherited lipid disorders, early detection and prevention. Amgen is one of […]

July 31, 2026

FHEF July 2026 Edition Heart Beat Newsletter

July was a month of preparation, advocacy, and momentum across the FH Europe Foundation network, with major developments in screening policy, rare disease recognition, precision medicine, and emerging treatment options. As the community prepares for FH Awareness Day, EU Screening Week, and key international events, efforts continue to advance early detection, patient empowerment, and equitable […]

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