Latest news

October 26, 2026

The European Rare Disease Blueprint: Why It Matters for the FH Community

FH Europe Foundation was proud to contribute to the development of the European Blueprint for Rare Diseases through participation in the European Regional Task Force. This work represents an important opportunity to ensure that the experiences of people living with inherited lipid conditions are reflected in future European and global health policies. While FH Europe […]
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October 20, 2026

Bringing Lived Experience into the Heart of the 6th Lipid School in Croatia

From scientific lectures to community health checks, FH Europe Foundation Ambassadors helped connect the latest evidence in lipidology with the realities of living with inherited lipid disorders. What happens when people living with inherited lipid disorders and their caregivers are invited not simply to attend a scientific meeting, but to become part of its educational […]
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October 15, 2026

France launches a national roadmap to strengthen cardiovascular prevention

France’s new 2026–2030 roadmap strengthens the national commitment to cardiovascular prevention, alongside a significant legal milestone: childhood screening explicitly including familial hypercholesterolaemia (FH). Announced on 14 October 2026, the roadmap aims to prevent cardiovascular and cerebrovascular diseases, identify risk factors earlier and improve support for people most at risk. According to the French Ministry of Health, […]
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October 12, 2026

EU Council Recommendation on Cardiovascular Health Checks and Early Screening

One Action Before 31 October: Help Shape the Future of Cardiovascular Prevention in Europe The coming weeks could be a defining moment for early detection and prevention of inherited cardiovascular conditions across Europe. FH Europe Foundation is calling on patient organisations, Ambassadors, healthcare professionals and advocates to take one concrete action before 31 October to […]
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