Latest news

April 24, 2025

Unlocking the Power of Genes: Why It Matters for Those Living with Inherited Lipid Conditions

This year marks the 13th Anniversary of World DNA Day (WDD-2025) and the celebration of National DNA Day on April 25th. The 2025 theme – “Unlocking the Power of Gene” – underscores the transformative role of genetics in shaping the future of healthcare. Unlocking the power of genes is crucial for individuals living with inherited […]

April 23, 2025

My HoFH Journey by Marius Scheepers

I feel like this is where we sit in a circle of chairs and I get up and say: “Hi, my name is Marius Scheepers, and I have Homozygous Familial Hypercholesterolaemia” … This year I turn 52. I am blessed with an amazing wife and kids (11-year-old twins). Life has always been a bit of […]

April 22, 2025

FH Europe Foundation’s First In-Person Ambassador Training in Cyprus

Limassol, Cyprus – 10-11 April 2025 – The picturesque coastal city of Limassol played host to the FH Europe Foundation's first in-person Ambassador Programme training event, a landmark gathering that brought together patient ambassadors, healthcare professionals, patient organisations and policy advisors from across Europe. Held under the auspices of the Cyprus Ministry of Health, the […]

April 18, 2025

European Patients’ Rights Day

On 18 April, we mark European Patients’ Rights Day – an important occasion dedicated to raising awareness of patients’ rights and promoting their protection across Europe. Established by Cittadinanzattiva/Active Citizenship Network in cooperation with various European citizens' organisations, the day is grounded in the European Charter of Patients’ Rights, which sets out 14 fundamental rights […]

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