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February 28, 2025

FHEF February 2025 Edition Heart Beat Newsletter

Explore the highlights from FH Europe's February 2025 Heart Beat newsletter to catch up on the latest news and events in the world of cardiovascular health: More than you can imagine: Celebrating Rare Disease Day 2025 with various activities and webinar FH Europe's Young Ambassadors among EURORDIS’ Rare Is Beautiful Photo Award 2025 finalists Members […]

February 1, 2025

Two New Members Join the FH Europe Foundation Team

We are delighted to welcome two new members to the FH Europe Foundation team, further strengthening our network and expertise. Their commitment and experience will contribute significantly to our mission of improving the lives of those affected by inherited lipid disorders. Maja Bartoszewicz-Moritz Joins as Project Manager for Rare Diseases We are pleased to introduce […]

February 25, 2025

A Step Forward for HoFH Patients in Lebanon: A Meeting with the Presidential Office

For patients living with Homozygous Familial Hypercholesterolaemia (HoFH) in Lebanon, access to life-saving treatment has been an ongoing challenge. Due to the country’s ongoing crises, LDL apheresis—the only available treatment for HoFH patients in Lebanon—was discontinued for a period, then resumed inconsistently. This uncertainty placed patients at high risk for premature cardiac events and severe […]

February 20, 2025

Celebrating Rare Disease Champions at the EURORDIS Black Pearl Awards

FH Europe Foundation is excited to announce our attendance at the prestigious EURORDIS Black Pearl Awards on Monday, 24 February 2025, in Brussels. This annual event, taking place in February, which also marks the occasion of Rare Disease Day, celebrates the outstanding achievements of people living with a rare disease, along with those who go […]

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