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April 18, 2025

European Patients’ Rights Day

On 18 April, we mark European Patients’ Rights Day – an important occasion dedicated to raising awareness of patients’ rights and promoting their protection across Europe. Established by Cittadinanzattiva/Active Citizenship Network in cooperation with various European citizens' organisations, the day is grounded in the European Charter of Patients’ Rights, which sets out 14 fundamental rights […]

April 2, 2025

FHEF March 2025 Edition Heart Beat Newsletter

Explore the highlights from FH Europe's March 2025 Heart Beat newsletter to catch up on the latest news and events in the world of cardiovascular health: Reflection on the fourth Lp(a) Awareness Day First-Ever Global Summit on Elevated Lp(a) Addressed Addressed One of the Biggest Unmet Needs in Cardiovascular Health Preparations for the upcoming HoFH […]

March 31, 2025

First-Ever Global Summit on Elevated Lp(a) Addressed Critical Gap in Cardiovascular Health affecting 1 in 5 people

Amsterdam, March 31, 2025 – More than 1.4 billion people worldwide are living with elevated Lipoprotein(a) [Lp(a)], an inherited cardiovascular risk factor that often goes undetected. Despite its clear link to heart attacks, strokes, peripheral arterial disease and aortic stenosis, only 1%-2% of the population is tested, leaving millions vulnerable to preventable cardiovascular events. The […]

March 25, 2025

Data Saves Lives Shares Update on EHDS Regulation

We are sharing an important update regarding the European Health Data Space (EHDS) regulation, which is set to come into force in late March 2025. This regulation has the potential to empower patients across the European Union by providing access to their health data and harnessing its research potential. First what is it? Data Saves […]

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