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March 25, 2025

Data Saves Lives Shares Update on EHDS Regulation

We are sharing an important update regarding the European Health Data Space (EHDS) regulation, which is set to come into force in late March 2025. This regulation has the potential to empower patients across the European Union by providing access to their health data and harnessing its research potential.  First what is it?  Data Saves […]
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March 24, 2025

First-Ever Global Summit on Elevated Lp(a) – Addressing One of the Biggest Unmet Needs in Cardiovascular Health

Brussels, March 24, 2025: One in five people globally—over 1.4 billion individuals—are living with elevated Lipoprotein(a) (Lp(a)), a significant, yet widely undetected inherited cardiovascular risk factor. Despite its clear link to premature heart attacks, strokes, and aortic stenosis, only 1%-2% of the population is tested, leaving millions vulnerable to preventable, life-threatening cardiovascular events. The economic and healthcare burden of cardiovascular diseases (CVD) is […]
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March 18, 2025

The Critical Medicines Act: Strengthening Access to Essential Medicines in the EU

On March 11, 2025, the European Commission published its Critical Medicines Act proposal. This Act aims to make sure that important medicines are always available in the EU. It focuses on improving the availability, supply and production of these critical medicines (within the EU), especially for rare diseases and other essential treatments.  The CMA is […]
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March 17, 2025

Connecting the dots between family and heart health

Years ago, after giving birth with pre-eclampsia, I had to push to get my blood pressure checked afterwards. Looking back, I wonder if my pre-eclampsia was already a signal of my hereditary elevated Lp(a) at the time. It’s now thought that these two may often occur together, a quiet warning I missed back then. It […]
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