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March 18, 2025

The Critical Medicines Act: Strengthening Access to Essential Medicines in the EU

On March 11, 2025, the European Commission published its Critical Medicines Act proposal. This Act aims to make sure that important medicines are always available in the EU. It focuses on improving the availability, supply and production of these critical medicines (within the EU), especially for rare diseases and other essential treatments. The CMA is […]

March 17, 2025

Connecting the dots between family and heart health

Years ago, after giving birth with pre-eclampsia, I had to push to get my blood pressure checked afterwards. Looking back, I wonder if my pre-eclampsia was already a signal of my hereditary elevated Lp(a) at the time. It’s now thought that these two may often occur together, a quiet warning I missed back then. It […]

March 15, 2025

FH Europe Foundation Endorses BBMRI-ERIC Position Paper on Academic Biobanks and Patient Participation

FH Europe Foundation is proud to endorse the position paper titled "Strengthening Academic Biobanks and Patient Participation for Biomedical Research." This document, developed by organisations such as the German Biobank Node (GBN) and the German Biobank Alliance (GBA), highlights the critical role of centrally organised academic biobanks in advancing biomedical research and patient care. As […]

March 5, 2025

No More Waiting: Action Needed for People with Rare Diseases!

The message was loud and clear at the Impact of Rare Diseases: More Than You Can Imagine event in the European Parliament on March 5: people living with rare diseases, including those with HoFH and FCS, cannot afford to wait any longer for faster diagnoses, better treatments, and equitable care. Co-hosted by MEPs Stine Bosse […]

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